Jonathan's Journey

Tales from the Crib

2009-02-19T10:34:00.005-06:00

For those who are interested in checking on my life after the NICU "Tales from the Crib" has returned and is once again an active blog. There's a link on the right sidebar of this blog. Feel free to come by for a visit.
Thanks,
JSR

Final Post

2008-06-25T16:28:00.003-05:00

This is the final post for "Jonathan's Journey." This blog was intended to give a record of my time in the NICU @ Brookwood Medical Center and now I'm home. The blog's purpose has been fulfilled, PRAISE! Therefore, I have a new blog "Tales from the Crib." In this blog I will give account of my ongoing journey as a preemie adjusting to life outside the NICU. Here's the link, http://jsrathome.blogspot.com/ Feel free to drop by anytime. The blog will be updated two to three times a week with plenty of video, pics, and updates. I initially planned on moving on from the whole blogging scene. However, family and friends from abroad convinced this was not in their best interest. So, we blog on.

To the NICU docs and staff @ BMC. You are truly AWESOME and we LOVE YOU!! I hope you drop me a line when you have time. If not, I'll see you at the reunion.

Thanks to everyone who prayed for me and thanks for letting me into a small portion of your life. Y'all keep praying and I'll keep growing! JSR, out!

Third & Fourth Days @ Home...

2008-06-07T22:50:00.006-05:00

As you do not know the way the spirit comes to the bones in the womb of a woman with child, so you do not know the work of God who makes everything.
Eccl. 11:5 (ESV)

The past two days have been pretty lazy around here. Well, for me they have been lazy. My Mommy and Daddy always seem to be doing something for me or other things that need to be done. My feedings are going well, some better than others, but still good, PRAISE! I'm starting to sleep longer when I nap. I was sleeping about 30 minutes at a time, but now I sometimes sleep from feed to feed (3 to 4 hours). I think my folks hope and pray this trend continues, LOL. Friday was a good day as Meme and Pop dropped in for a visit. One neat thing was it was their first opportunity to hold me. I think they had a good time, LOL. (I've included at the end of this post a short video from their visit.) Today has gone well with Mommy and I hanging out most of the day while Daddy did a ton of stuff around the house. He even did the monthly Wal-Mart run and cooked dinner.

Last week I mentioned that the blog (Jonathan's Journey) would be ended when I get home. My reasoning was that it was intended to record my journey through the NICU and to provide my loved ones with updates. Well, let me tell you that some of my family and friends weren't all that thrilled with that option. So, I've decided to continue to blog about my life as a preemie. However, soon there will be a new blog that will be updated every two or three days. This way all my loved ones, and anyone else who wants to, can follow my progress over the next few months. I don't have a title yet, but it'll happen sometime within the next couple of days, Lord willing. For the time being there will be a second photo album on the right hand side of the screen containing all the pics since I got home.

Thanks for praying for me and I ask that you continue to pray as the Lord leads. Little guys like me are vulnerable to sickness and the slightest little bug and turn into something serious in a snap. So, pray for health, strength, growth, and a good immune system. Tomorrow is Sunday and I know many of you will be attending worship. Don't forget to offer thanks for what the Lord has done, is doing, and will do. Thanks again!! Later JSR.

Second Day @ Home...

2008-06-05T20:04:00.003-05:00

Today was a good day. Daddy gave me my early morning feeding then Mommy and I spent the rest of the AM just hanging out before my afternoon doctor's appointment. My appointment went well. PRAISE! Dr. Harmon said everything looked good and he'd like for me to gain full pound by our next visit. We like Dr. Harmon, he's a nice guy who doesn't make you feel like you're just the next patient. Late in the afternoon or early evening we had some friends (adopted aunts) bring us dinner, Diva and Mrs. Siggie. They are the ladies who painted my room when my folks just couldn't get to it. So, they are already way ahead of the game on the hug meter. It was good to see them again. I wanted to include some video clips with this post, but my video guy hasn't been able to get to it yet. I'll speak with him about this, LOL. Please continue to pray that I get settled in quickly, start sleeping more consistently, and continue to have good health. Blessings, JSR.

First Day @ Home...

2008-06-04T16:03:00.011-05:00

How lovely is your dwelling place, O Lord of hosts! My soul longs, yes, faints for the courts of the Lord; my heart and flesh sing for joy to the living God. Even the sparrow finds a home, and the swallow a nest for herself, where she may lay her
young, at your altars, O Lord of hosts, my King and my God. Blessed are those who dwell in your house, ever singing your praise! Selah
Psalm 84:1-4 (ESV)

We left the NICU about 6 PM last night, Tuesday evening. I slept through the whole first trip outdoors and first car ride deal, but I'm sure I'll get plenty of exposure to both. When we got home my folks placed me in a bassinet in our living room. I spent the rest of the night napping, eating, and taking in my new surroundings. Home is a lot different than the NICU was, so I decided to stay awake a lot last night in order to adjust to my new surroundings. One neat thing is I got to meet our cat, Annie. She was really cautious at first, smelling everything associated with me, and she dared to get closer as the night wore on. I guess her curiosity got the best of her, LOL. Now she just stays close by. Needless to say, it was a busy and tiring day.

Today, Wednesday, has been really low key. My Dad has gone out a couple of times to run some errands, but Mommy and I have spent the day hanging at the house. Our pastor, Burt, came by for a while. He toted me around just about the whole time he was here. He's got eight children so he's had a ton of experience at carrying babies, LOL.

It's good to be home! PRAISE!! I'll post more tomorrow, including some video of the trip. Please continue to pray that the first few days go well as we make the necessary adjustments, thanks! Later, JSR.

One Hunded & Fifth Day, "Discharge Day"

2008-06-03T04:33:00.004-05:00

Today is the day we've been looking forward to since we got here, it's Discharge Day. PRAISE!! I had a good night and am going to have a busy morning. In a little while my doc will come by and do that one last thing that makes men cringe, LOL. I'll be monitored closely the rest of the day to make sure everything is good to go. Please pray that things go well and that there are no surprises. God has been ever so gracious to me every step along my journey and I know he'll continue to be. This afternoon my folks will have a long sit down with Dr. DiCarlo and then it will be time to go. The NICU usually discharges babies between 2 and 4 PM, so we should be leaving somewhere around that time. I'll post an update once we get home and I'm settled. I hope each of you has a blessed day. Later, JSR.

God said, “My presence will go with you.
I’ll see the journey to the end.”
Moses said, “If your presence doesn’t take the lead here, call this trip off right now. How else will it be known that you’re with me in this, with me and your people?
Are you traveling with us or not? How else will we know that we’re special, I and your people, among all other people on this planet Earth?”
God said to Moses: “All right. Just as you say; this also I will do, for I know you well and you are special to me.
I know you by name.”
Ex. 33:14-17 (TMSG)

One Hundred & Fourth Day...

2008-06-02T05:21:00.005-05:00

Sunday was a relaxed day in the NICU. It was so quiet around here that many times my folks were the only people not employed by or admitted to the NICU. I had a really good day of napping, eating, and just resting, PRAISE! I go to spend some quality time with both Mommy and Daddy. BTW, the reason my Daddy is wearing those gloves is he's got a touch of poison ivy and he didn't want me to be exposed. Everything is still set for me to go home on Tuesday and unless God has other plans that's what we'll do, Woo-Hoo!! I"ll spend today just hanging out and logging time until I've been off the O2 for seven calendar days, which will be tomorrow. Tonight when my folks left they said good-bye to the weekend staff. This will probably be the last time we see them and everyone wanted to hug and chat for a few before they left. There's a bond between a preemie, their parents, and the people who care for them; especially for those families that are in the NICU as long as we've been. It was a great moment to be a fly on the wall for. Please pray that there are no surprises and we continue right on schedule. I'll post more later. Blessings, JSR.

God, my strength, I will sing praises to you.
God, my defender, you are the God who loves me.
Psalm 59:17 (NCV)

One Hundred & Third Day...

2008-06-01T06:22:00.004-05:00

Greetings from the NICU @ BMC. Saturday was a productive day for me. (BTW, May 31, 2008 was my original due date, obviously things didn't exactly follow the calendar.) All my vitals remained good and my feedings went well, PRAISE! When my Mommy came in yesterday she brought my car seat so I could take the "Car Seat Test." This is a test you must pass before you can go home. Basically, they sit you up in the seat like you were going on a trip. I got all strapped in and they placed all the blankets and stuff around me, just like it will be in our van. Then they leave you alone for about 30 minutes, the whole keeping a close eye on your O2 sat rate. I had to keep my saturation rate above 90 for the entire time. I passed with a range of 90 to 97, which my nurse said is GREAT, PRAISE! One more hoop down and now only a few more to jump through and I'm outta here, PRAISE!! My folks will be so excited. Today is Sunday and my Mommy and Daddy will be by after church. Meme and Pop are also coming up for their usual visit, cool. It should be a really relaxed day for all of us. I hope everyone has a great time at worship and enjoys the day. Please keep me in your prayers and be sure to thank the Lord for his marvelous work on my behalf. I'm gonna run now and get the day started. Soli Deo Gloria!

But the hour is coming, and is now here, when the true worshipers will worship the Father in spirit and truth, for the Father is seeking such people to worship him. God is spirit, and those who worship him must worship in spirit and truth.
John 4:23-24 (ESV)

One Hundred & Second Day...

2008-05-31T07:18:00.008-05:00

Friday was another good day. It was so quiet in the NICU that Mommy was having trouble staying awake, LOL. I continue to do well in all the vital areas and am making steady progress. There's really nothing new to report except, it was another good day and there's nothing new to report, which is BIG news!! PRAISE!! My discharge date has been moved up from Wednesday to Tuesday, a day earlier than we originally thought. That's cool because my folks have everything set for me at home. I hear my room is really neat and that a lot of people helped to make each part really special. I'll be sure to post about that when I get home. Speaking of future posts. As you know this blog is entitled "Jonathan's Journey: a preemies journey through the NICU at BMC." Well, that's when my blog will end, when I get home. I'll make a couple of post from home and that will close out the blog. I've had a bunch of people ask me about this so I thought I'd go ahead and mention it. Anyway, please continue to pray for me as I move a day closer to the end of this short journey in the great adventure that is life. God bless and keep you today! JSR, later.

Now may the God of peace who brought again from the dead our Lord Jesus, the great shepherd of the sheep, by the blood of the eternal covenant, equip you with everything good that you may do his will, working in us that which is pleasing in his sight, through Jesus Christ, to whom be glory forever and ever. Amen.
Heb. 13:20-21 (ESV)

One Hundred & First Day...

2008-05-30T04:33:00.004-05:00

You call out to God for help and he helps—he’s a good Father that way. But don’t forget, he’s also a responsible Father, and won’t let you get by with sloppy living. Your life is a journey you must travel with a deep consciousness of God.
1 Peter 1:17 (TMSG)

Hello and good morning guys. Thursday was a uneventful day in the NICU, which means it was a good day. I continue to improve in all the important areas (O2, strength, stamina, feedings, and weight gain). All signs point to my journey through the NICU nearing its end as each day I move closer to going home, PRAISE!! Please pray for continued progress and growth. I can't put into words, my vocabulary is a little limited, the appreciation my family feels for everyone who has prayed for me. God has been so gracious! I'll be sure to keep you up to date if anything changes. I hope each of you has a blessed day! JSR, Later.

100th Day...

2008-05-29T04:29:00.006-05:00

Today marks the one hundredth day of my journey through the NICU. WOW, has it really been one hundred days?! In some ways it seems like longer, but in other ways it seems like I was born yesterday. Speaking of yesterday, it was a really good day for me. I am still off the cannula, PRAISE! My breathing continues to be just what the docs want to see, PRAISE! The nurses, RT's, and doctors have all been so good to give me exactly what I need to succeed. God has really worked mightily through them. Everything is still moving in a positive direction and it looks like I may be heading home sometime next week. The docs want me to be breathing 100% on my own for seven days before they'll send me home without O2. So, if things keep improving I could go home a week from yesterday, Wednesday. My folks are still keeping a "one day at the time" attitude, but you can tell they're already thinking about what's next. They have been working really hard to make things just right for me when I come home. Today I'll be closely monitored to make sure I'm good O2-wise. So, pray that everything continues along its current path. I hope you all have a great day filled with Christ's peace and love. Later, JSR.

Psalm 113
Who Is like the Lord Our God?
Praise the Lord!
Praise, O servants of the Lord,
praise the name of the Lord!
Blessed be the name of the Lord
from this time forth and forevermore!
From the rising of the sun to its setting,
the name of the Lord is to be praised!
The Lord is high above all nations,
and his glory above the heavens!
Who is like the Lord our God,
who is seated on high,
who looks far downon the heavens and the earth?
He raises the poor from the dust
and lifts the needy from the ash heap,
to make them sit with princes,
with the princes of his people.
He gives the barren woman a home,
making her the joyous mother of children.
Praise the Lord!
(ESV)

Ninety-Ninth Day...

2008-05-28T04:39:00.005-05:00

Greetings from the NICU. Take a look at the picture on the left. Do you notice anything? Is something missing? Yep, sure is! I'm not wearing my cannula, which means I am breathing on my own, PRAISE!!! Since late Sunday afternoon the nurses and RT's have been taking me off any and all breathing help for periods of time. I've been doing well and each time I get better at maintaining my O2 saturation rate. This may not be a permanent thing and I may still require some O2 help when I go home, but it is still HUGE. As this is being posted I've been on my own for a little over twelve hours, PRAISE! My folks are still stressing we take things one day at a time. We beg God for a good day today and we'll deal with tomorrow when it gets here, but Tuesday was a really really good day for me. Thanks for the continued prayers, because prayer works!! Last night my nurse, Kelly, gave a big ole' bath, dressed me up real cute, and took me around the NICU showing me off to everybody. It was so cool to be able to "cruise" around and see everybody. My feedings are still going well and I seem to be improving in all the necessary areas, PRAISE! I've said it a thousand times over the last 99 days and I'm gonna say it again; God has been more gracious to me than I could ever deserve! Soli Deo Gloria

Now to Him who is able to keep you from stumbling, And to present you faultless before the presence of His glory with exceeding joy, To God our Savior, Who alone is wise, Be glory and majesty, Dominion and power, Both now and forever. Amen.
Jude 24-25 (NKJV)

Ninety-Eighth Day...

2008-05-27T04:47:00.014-05:00

Jesus the Great High Priest
Since then we have a great high priest who has passed through the heavens, Jesus, the Son of God, let us hold fast our confession. For we do not have a high priest who is unable to sympathize with our weaknesses, but one who in every respect has been tempted as we are, yet without sin. Let us then with confidence draw near to the throne of grace, that we may receive mercy and find grace to help in time of need.
Heb. 4:14-16 (ESV)

I had a great Memorial Day and I hope everyone else did as well. It was a really slow day in the NICU with few visitors and not too much activity, a good day to nap. I've been doing really well with my O2 as I spent much of the day and night on "room air", which is AWESOME news, PRAISE!! God has really been taking good care of me! Duh, ya think?! My feedings continue to go well and my strength and stamina seem to be on the rise. I still have bushels of growing to do, but things are moving in the right direction. Today we'll continue to focus on making strides with my BPD. Thanks so much to everybody for keeping me before the throne of grace! Y'all keep praying and I'll keep growing. Have a blessed day. Later, JSR.

Ninety-Seventh Day...

2008-05-26T10:37:00.007-05:00

And we know that all things work together for good to them that love God, to them who are the called according to his purpose.
Roman 8:28 (KJV)

Hey guys, I hope everyone is having a great Memorial Day. Yesterday was a good day. I hung out with my folks for most of the day. My feedings went well and I got lots of sleep. The goal is to get me all prepared to leave the NICU. It'll take anywhere from ten days to three weeks to get me set. It all depends on how I adjust to the changes required for me to leave. Please pray everything goes smooth. Late in the afternoon we watched the mandatory CPR and car seat videos. Every parent has to watch these videos before taking their child home. Also, anyone who will be caring for me has to take a three hour CPR class. Mommy and Daddy took theirs' last week so they're good to go. Please continue to pray for my BPD issues and continued improvement in general. Today will be a lazy day full of eating and sleeping, YES! Speaking of sleeping, I've included a short clip of me snoring for those who wanted to hear it. (I hope Aunt Twyla and "E" enjoy it.) I'm gonna run for now. Blessings, JSR.

Ninety-Sixth Day...

2008-05-25T08:17:00.005-05:00

God, the Lord, is my strength;
he makes my feet like the deer’s;
he makes me tread on my high places.
Hab. 3:19 (ESV)

Hello everybody, it's Sunday and I hope everybody has a great time at worship and that your weekend is going well. I heard this weekend is special because it's a national holiday, Memorial Day, which means an extra day off work for some. That means I'll get to see my Daddy one more day this week, PRAISE! I'm sure that as I get older I'll learn all about the significance of the day since a bunch of my family members have served in the armed forces. My Pop was in the Air Force and my Daddy was in the NAVY. Anyway, I'll quit rambling and get to the update.

I've had a good weekend thus far. The staff is starting to adjust my meds in preparation for me going home, PRAISE! Going home is a HUGE deal even if I go home on O2. I am eating fine although lately I've had an issue with spitting up. It's the normal stuff preemies go through and no one is overly concerned about it. My caregivers see it all the time and know how to deal with it. The only thing is when I spit up it usually comes up through my nose, which I absolutely hate, but who wouldn't? I'm not real crazy about them sticking that suction syringe up my nose, but it's necessary. I'm resting well and enjoying just hanging out, PRAISE! Yesterday I got to do something really cool. I got my first ride in the swing (see pictures above). I went right to sleep once that thing started moving, LOL. Well, that catches you up on the latest news. I hope everyone has a great holiday. Please continue to pray for my BPD, feedings, and continued improvements in strength, weight gain, and stamina. Y'all keep praying and I'll keep growing. Later, JSR.

Ninety-Sixth Day...

2008-05-24T10:56:00.007-05:00

Friday was a good day for me. I ate good, slept well, and thoroughly enjoyed hanging with my Mom. (BTW, this picture shows how she usually finds me, all scrunched down in the end of my crib.) Late in the day I was examined by Dr. Lozano, my pediatric pulmonologist. Afterward he spoke with Mommy about my struggles in stabilizing my O2 saturation rate. It seems that I have a lung condition called Bronchopulmonary Dysplasia (BPD). Basically, my lungs don't have enough air sacs to consistently supply me with the O2 I need. The good thing is that as I grow my lungs will develop more air sacs and I will gradually get better. So, it's something I'll grow out of. The negatives are that 50% of babies with this condition have asthma, and I am more vulnerable to illness. A cough could turn into a two week stay in the hospital. To lessen the chances of me getting really sick I'll have to be somewhat of a recluse for my first couple of years. So, when you come to see me you can't be sick and you have to wash your hands. If not, my folks won't let you in the house, LOL. You know it's a little bit of a downer finding out part of your body doesn't work right. But, it's not the end of the world. Actually, God has been really gracious to me. A lot of preemies have issues that they won't grow out of, but will deal with their whole life. I'll get better! Also, asthma is treatable and there are bunches of people who have asthma and you'd never know it. All things considered God is still being very good to me! Have a great weekend! Blessings, JSR.

This is a sign made to celebrate my three month B'day.

A big THANKS to whoever made it for me!

Three times I pleaded with the Lord about this, that it should leave me. But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.
2 Cor. 12:8-10 (ESV)

Ninety-Fifth Day...

2008-05-23T04:57:00.004-05:00

And the LORD God formed man of the dust of the ground, and breathed into his nostrils the breath of life; and man became a living soul.
Gen 2:7 (KJV)

Thursday was a good day. I have shown signs of improvement with my O2 and breathing from the Lasix and other treatment I've received, PRAISE! So, the docs have started to get a touch more "aggressive" in their strategy. I've mentioned before that preemies occasionally have fluid build up around their lungs, which can make normal breathing a tad difficult. All indications are that I'm having to deal with this issue. It's not a large amount, but enough to cause a slight change. So, Thursday night I started receiving a more potent diuretic that will speed up me getting rid of any extra fluid. This means I will have to tee tee a lot, LOL. Hopefully, as the meds do their thing my O2 saturation rate will improve even more, thereby allowing me to reach our goal of me maintaining a normal O2 saturation level without any help. Please pray for successful treatments and improved breathing. My feeds are still going well and I'm doing great in all the other major stuff, PRAISE! I'll keep you updated on how everything progresses. Later, JSR.

Ninety-Fourth Day...

2008-05-22T04:17:00.005-05:00

Good day y'all. Well, the Lord granted us yet another splendid day yesterday, PRAISE! I had a really good day sleeping, eating, and what not. My O2 issues are getting better, but I'm not sure they're to the point of me going home without home O2. My docs are going to evaluate things tomorrow and give us their thoughts on how we should proceed. Pray that everything goes well. I spent a good portion of the day just looking around taking in the scenery. The older I get the more time I spend just watching. There are times I lie in my crib just letting my eyes roam around taking in the sights. It's a blessing to be as healthy as I am! I have a bunch of NICU-mates who are so sick all they have time to focus on is getting better. My folks always thank God for my progress and pray for the little ones who aren't doing so well. I don't have anything special set for today so we'll concentrate on continuing to improve my O2 saturation. Everyone have a great day! Blessings, JSR.

...Let the one who boasts, boast in the Lord.
1 Cor. 1:31 (ESV)

Ninety-Third Day...

2008-05-21T04:06:00.006-05:00

I had a good day on Tuesday and really good night. Yesterday I spent a good portion of the day just breathing "room air" without O2 help, PRAISE! I was still on room air when the night shift nurse, Stacy, came on at 7pm. She did have to bump me up during feedings, but that's to be expected. My feedings went well and everything seems to be in tip top shape, PRAISE! So, as you can see the Lord has been gracious and I'm making good progress. Pray that today is another day in a positive direction. I have nothing special set for today so we'll just keep doing what we're doing. BTW, I forgot to mention that I had a chest Xray the other day and everything was normal, PRAISE! Thanks so much for all the prayers!! I'm gonna run so I can eat breakfast and get into the day. Y'all keep praying and I'll keep growing. Blessings, JSR.

This is the Lord’s doing;
it is marvelous in our eyes.
This is the day that the Lord has made;
let us rejoice and be glad in it.
Psalm 118:23-24 (ESV)

My Aunt Twyla called last night just to check on me. She and my uncle (Big "E") live in Mississippi and can't visit much. So, I thought I'd post some video for my loved ones who live across the country and around the world (MS, IA, GA, CA, NY, IN, TN, FL, ME, TX, and Australia). It was taken on 5/20 just after supper. It's kinda long (5 min. 34 sec.) and there's not much action, but it does show how I've grown. Don't worry, I won't take it personally if you don't watch the whole thing, LOL. Enjoy!

Ninety-Second Day...

2008-05-20T04:45:00.003-05:00

Greetings from BMC. Monday was another good day, PRAISE! This week they staff is putting on a full-court press in an effort to get me off O2 assistance. I've been progressing all along, but I still get a little help. My docs have decided it's time for me to be a "big boy" and do it myself. I wish I had the capacity to explain everything that needs to happen and how it all works, but it's kinda confusing. So, I'll just give you the basics. The docs have a standard for O2 saturation that I must maintain before they'll send me home without O2 help. If I don't meet a saturation rate of at least 90% at all times then I will be sent home on "Home O2." We are praying for me to be able to meet this goal within the next week to ten days. Please join us in praying for specifically for this. My feeds and poops are going well and I'm doing just fine in every other area, PRAISE! The only thing keeping me in the NICU are my O2 issues. Once that gets settled then I'm off to the next chapter in my life. It would be GREAT to go home without the O2 help and all the stuff that goes with it. But, even if I go home with O2 help I'm not worried. God has brought me this far and I know he'll provide for me, no matter what. I heard a line from a song recently that says it all. "T'is so sweet to trust in Jesus, and to take him at his word; just to rest upon his promise, and to know, "Thus saith the Lord." I'm gonna run so I can get the day started. Later, JSR.

Trust in the Lord with all your heart, and do not
lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.
Prov. 3:5-6 (ESV)

Ninety-First Day...

2008-05-19T05:18:00.005-05:00

Good day y'all, yesterday was a great day. I did well with my nursing and all my breathing/O2 stuff was good. So, it was a restful and uneventful Sunday. Meme and Pop came up for a visit and I got to meet some new friends. My Uncle David's friend, Ellie (sp?), was in town for a friends' reunion so she stopped in. She brought with her one of my Mommy's friends from college, Melonie. It was really cool to meet them. It was a good day and Mommy, Daddy, and I got to spend some time together. The goal for this week is to get me off the O2. Thanks for all the prayers, love, and support!! Have a great day. Later, JSR.

The fundamental fact of existence is that this trust in God, this faith, is the firm foundation under everything that makes life worth living. It’s our handle on what we can’t see.
Heb. 11:1 (TMSG)

Ninetieth Day...

2008-05-18T08:34:00.002-05:00

Hello, I hope y'all have had a great weekend thus far. There's not much to update you guys on right now. The focus over the next week is going to be getting me weaned off the O2. My feeds have been going well and I'm back to pooping on my own regularly, LOL. Strength and stamina wise I'm doing fine, but I will need more strength and stamina when I breath all by myself. So, please pray for steady improvement in those areas specifically. The evaluation next Friday will be significant so I need to do a lot of work. The Lord has been my faithful companion every step of my journey and I know he will continue to be. So, we'll pray each day for a good day and trust the Great Physician for the results. I hope everyone has a great day of worship to our great God and King. Blessings, JSR.

This is my commandment, that you love one another as I have loved you. Greater love has no one than this, that someone lays down his life for his friends. You are my friends if you do what I command you. No longer do I call you servants, for the servant does not know what his master is doing; but I have called you friends, for all that I have heard from my Father I have made known to you. You did not choose me, but I chose you and appointed you that you should go and bear fruit and that your fruit should abide, so that whatever you ask the Father in my name, he may give it to you. These things I command you, so that you will love one another.
John 15:12-17 (ESV)

Eighty-Eighth & Ninth Days...

2008-05-17T05:57:00.004-05:00

For I know the plans I have for you, declares the Lord, plans for wholeness and not for evil, to give you a future and a hope.
Jer. 29:11 (ESV)

Hello, as some of you noticed I missed yesterday's update. I got busy in the AM and it just snow-balled. I never could squeeze in a few minutes of computer time to update. Thursday was a day like the ones I've been having lately, really good. Friday, however, was a much more interesting day. The ophthalmologist finally came by and did my eye exam. He concluded that my eyes aren't yet fully mature, but he's fine with me going home on O2. So, that leaves the decision of should I stay or should I go to my folks and my docs. Dr. Mena told my Mommy, "You tell me you want to go home and we'll start heading that direction and he'll be fine. But, I'd rather have him off his O2 before he goes home." My Mommy and Daddy agreed that it would be better if I was off the O2 when I went home. If I go home breathing on my own then I will have fewer doctors and fewer visits to the doctors I do/will have. So, we are going to try some different approaches to kinda force the issue on weaning me off O2. This is not uncommon for preemies. I will be reevaluated next Friday and we'll go from there. So, it's all good. I'm still doing great, but things aren't working out like we all "planned" in our minds. Ain't it funny how God does that. He doesn't seem to get consumed with our plans like we do. He just does what he does and it's always right and good. That's so cool that He's that way for us or we'd really get into trouble. Well, you are now up to date. Please pray for me to be weaned off supplied O2 and to begin to breath room air 100% on my own. Y'all keep praying and I'll keep growing. Later, JSR.

Eighty-Seventh Day...

2008-05-15T04:51:00.004-05:00

Good morning guys and gals. Well, yesterday was a repeat of Tuesday. I still had no trouble nursing and continued to do well with my O2 issues (PRAISE!), but still no doc and still no non-medically induced poop. So, it was a good day where things didn't go exactly like we wanted. My Daddy is always telling me to "...get used to that not always getting what you want." I guess I'll figure out what he's talking about as time goes on. The ophthalmologist should be buy to do my eye exam at any moment. He was supposed to come on Tuesday, but things happen. My Mommy works in a doctor's office and she understands, but she wants him to come by asap. She's ready to know when I might be getting out of here. Ah, another one of those not getting what you want deals my Daddy told me about. You know what? I'm so glad we can trust that God is in control when delays happen. We don't have to worry cause when we need something it'll be there. Now, that's way cool! Today's agenda will be continued improvement and an eye exam, hopefully. Pray for continued gains in O2 saturation, strength, stamina, a good poop without help, and a good eye exam. I'm gonna run so nurse Neely can get me set for day shift. Y'all keep praying and I'll keep growing. Later, JSR.

You will show me the path of life;
In Your presence is fullness of joy;
At Your right hand are pleasures forevermore.
Psalm 16:11 (NKJV)

Eighty-Sixth Day

2008-05-14T04:31:00.004-05:00

Hey Y'all. Yesterday was a good day in that I nursed well and had another consistent day with my O2 saturation rate, PRAISE! However, it was a less than spectacular day in that I had a tummy ache, was constipated, and the ophthalmologist didn't show for my eye exam. So, we had some good, some bad, and some disappointment. The tummy ache looks to be the normal baby stuff and I should get over it. If I don't go potty on my own by noon they'll probably have to help me along with a suppository. Oh what fun that will be! I'm a little disappointed that the doc was unable to get to my exam yesterday, but doctors are busy and sometimes things just come up and require adjustments to the schedule. It's no biggie, but hopefully he can squeeze me in at some point today. So, my prayer requests for today are a good eye exam, a good poop, and continued consistency and improvement in my O2 saturation and nursing. Also, please pray for my Mommy and Daddy. I can tell they are tired and need some rest and relaxation. Well, that about covers the latest so I'm gonna run and get my day started. Blessings, JSR.

And my God will fully satisfy every need of yours according to
his riches in glory in Christ Jesus.
Phil. 4:19 (NRSV)

Eighty-Fifth Day...

2008-05-13T04:45:00.004-05:00

Greetings from the NICU. Monday was a nice and easy day with nothing out of the ordinary happening, PRAISE! At this point any day where everything stays pretty much on course is a GREAT day. Today, however, is a significant day because get a good idea of when I'll be checking out of Hotel NICU. At some point the eye doc will come by to check me out. At that point he'll let us know if my eyes are mature enough for me to go home. So, it goes without saying that this could potentially be a BIGGIE. Even if he says I'm good to go I'll still be here for ten days to fourteen days. It takes a few days to get us little guys adjusted to the differences between NICU care and home life, but we'll have a definite idea of when this journey will end. If he says my eyes still need to develop some more then I'll be here a while longer, which is ok. I wanna go home, but if I need to stay a little while longer I'm cool with that. The doctors know best and God's got all of this under control so I'm good either way. My folks aren't really stressing over it except Mommy wants everything at home to be perfect for me. Just pray the exam shows my eyes are healthy no matter what stage of maturity they're at , that's the most important thing anyway. I don't know the time of my exam, but I'll try to update asap after it's over. Thanks for praying!! I'm gonna run so I can get the day started. Later, JSR.

Your eyes are windows into your body. If you open your eyes wide in wonder and belief, your body fills up with light. If you live squinty-eyed in greed and distrust, your body is a dank cellar. If you pull the blinds on your windows, what a dark life you will have!
Matt 6:22-23 (The Message)

Eighty-Fourth Day...

2008-05-12T04:35:00.004-05:00

Hello, I hope everybody had a great weekend, especially the Mothers. I'm set for a chest X-ray later today and an eye exam tomorrow, but the rest of the week is open. I'm doing really well with my feeds and O2 stuff. Yesterday Dr. DiCarlo upped my feeds to 65 cc per serving, PRAISE! I'm getting stronger and my stamina is improving almost daily. So, as you can see, I'm doing well and am making great progress. The Lord has really been gracious to give me good days and to keep me safe. My folks are always saying how thankful and grateful they are for God's work in my young life and body. Today will be low key and somewhat boring, which is GREAT! We are still taking things one day at a time and praying for a good day today. Please continue to pray for sustained improvement and my upcoming eye exam. Thanks so much for all your prayers and support. God has really used you to encourage us along this journey. Below are a couple of pics of the Mother's Day card I and some ladies made for my Mommy. Much love, JSR.

Do not fear, for I am with you; Do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you, Surely I will uphold you with My righteous right hand.
Isa. 41:10 (NASB)

Eighty-Third Day "Mother's Day"...

2008-05-11T15:05:00.004-05:00

Happy Mother's Day to all the Moms! Today is special because we celebrate our mothers and all they have meant and mean to us. I know I'm young, but I've been around long enough to know that my Mommy is going to be very important to me. Being in the NICU means I have nurses who care for me, but they don't compare to my Mommy. When she feeds me or changes my diaper there's a different feel than when the nurses do it. Her touch is a little softer and her hands are more comforting. I can't explain it, but I'll bet that's love I'm feeling.

It's pretty lazy in the NICU today, not too much going on. Mom and I are just hangin' out enjoying the day together. Daddy was here, but he had to go do some errands and other stuff. I continue to do well with my feeds and my breathing/O2 saturation continues to get better. So, we're still doing great, PRAISE! The word on the street is that if things continue to improve I could possibly be outta here in a couple of weeks. We'll keep praying and see what the Lord has planned. Well, that's it for today. Oh, I almost forgot, I've included some pics from earlier today. I'm gonna run so I can take another nap, LOL. Love and blessings to all the Mothers!! JSR, out.

The Lord your God is in your midst,
a mighty one who will save;
he will rejoice over you with gladness;
he will quiet you by his love;
he will exult over you with loud singing.
Zeph. 3:17 (ESV)

Eighty-Second Day...

2008-05-10T08:05:00.005-05:00

The weekend is here! I like the weekends when things slow down and the NICU is not SO busy. I slept in a little late this morning. I don't have anything special scheduled, so why not? Mommy and Daddy must have slept in as well. Daddy just called at 7:30 for the morning update on me, he usually calls a lot earlier. My nurse today is Ann, she's nice, and she told him that I was doing fine, I'd had a good night, and was just hangin' out. I'm still doing well with my feeds, breathing, pooping, and body temp. Actually, the only thing keeping me in the NICU are my eyes. There's nothing wrong with them that we know of, but all preemies have to reach a certain level of eye development before they are discharged. I ave a eye exam set for next Tuesday. Then we'll find out the details on when I might be going home. We're still taking it one day at a time, but my journey through the NICU appears to be nearing it's end. Still, we won't count our chickens before they hatch. God has been so gracious to us during this time! Please continue to pray for my continued growth, improvement, strength, and stamina. Also, pray for my folks as they are "stressed" about everything being perfect for me when I do get to go home. They work hard and try to squeeze every second out of each day getting the house ready for me. I'm gonna run for now as it's time to get the morning routine started. Don't forget about tomorrow, Mother's Day! Later, JSR.

Jesus answered, “God can do things
that are not possible for people to do.”
Luke 18:27 (NCV)

Eighty-First Day...

2008-05-09T04:52:00.006-05:00

Hello. Yesterday,Thursday, was another good day. I had really good feeds where I ate at a good pace where I wasn't eating so fast that I choked myself. My O2 saturation rate stayed about the same as Wednesday, and my body continued to regulate my temp without any help. So, everything is moving right along. The Lord sure has blessed me with some good days and we are SO thankful! Today will be much like yesterday unless something comes up. Just keep praying for continued improvements and increases in strength and stamina, a preemie can never have too much of either one. Blessings, JSR.

Why do you say, O Jacob, and speak, O Israel, “My way is hidden from the Lord, and my right is disregarded by my God”? Have you not known? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary;
they shall walk and not faint.
Isa. 40:27-31 (ESV)

Eightieth Day...

2008-05-08T05:05:00.006-05:00

And they were bringing children to him that he might touch them, and the disciples rebuked them. But when Jesus saw it, he was indignant and said to them, “Let the children come to me; do not hinder them, for to such belongs the kingdom of God. Truly, I say to you, whoever does not receive the kingdom of God like a child shall not enter it.” And he took them in his arms and blessed them, laying his hands on them.
Mark 10:13-16 (ESV)

Greetings from the NICU. I hope everybody had a good day yesterday. I had a good day without any surprise issues popping up. Things are pretty much running according to the way God designed them. I continue to have good feeds. I have slowed way down on how fast I eat and don't get choked as much, PRAISE! My O2 issues are still improving slowly but surely. It's not uncommon for preemies to be O2 for a while after they are born. We got back the results from my head ultrasound and everything came back normal, PRAISE! So, I'm doing just about as well as a preemie can. WOW, God has been so good to me!! It's hard to believe things have gone as well as they have thus far. I have had very few issues and nothing out of the norm. Grace is so unbelievable!! My Daddy told me to get used to it cause God loves us that way. COOL!! I gotta run for now the day is getting started without me. Later, JSR.

Seventy Ninth Day...

2008-05-07T05:22:00.004-05:00

Hello and good morning y'all. I had a great day Tuesday and an uneventful night. Kelly, one of our favorites, was my nurse and she took really good care of me. I ate well, slept well, and pretty much behaved myself. I continue to make steady progress and the staff is pleased with where I am and how I'm doing. So, we're still taking things one day at a time. I know it gets old hearing the same news everyday, but we like "the usual" when it's "...breathing improving," "...ate well," "...slept like a baby." I'll take of those days God graciously gives me. Jesus has really been a rock for my family throughout my journey. He's proven to be faithful as long as I've been around here. Well, I'm gonna run and get into the day. Please continue to lift me up for breathing, eating, and strength. Thanks!! Blessings, JSR.

How lovely is your dwelling place, O Lord of hosts! My
soul longs, yes, faints for the courts of the Lord; my heart and
flesh sing for joy to the living God. Even the sparrow finds a
home, and the swallow a nest for herself, where she may lay her
young, at your altars, O Lord of hosts, my King and my
God. Blessed are those who dwell in your house, ever singing your praise! Selah
Psalm 84:1-4

Seventy-Eighth Day...

2008-05-06T05:00:00.003-05:00

Good day y'all. Yesterday was another good day in the NICU. I had the head ultrasound and we should get the results in a few days. Mommy was here for it and she said the lady doing the exam didn't give any indication that she saw anything out of the norm. So, we'll pray and wait to see what the report says. Other than the exam it was a routine day for me. I got to snuggle with Mommy and my feeds all went well. Last night I got a real good bath. My nurse gave me a good scrubbin' and then rubbed me down with baby lotion. I am as clean as a new penny and smell really good. Today will be a normal day unless something unforeseen comes up. I'll have a normal lab and all the regular diagnostic stuff. Please pray for continued progress in all the usual areas. I'm gonna run now as it's time to start my day. God Bless, JSR.

This is the day which the LORD has made;
Let us rejoice and be glad in it.
O LORD, do save, we beseech You;
O LORD, we beseech You, do send prosperity!
Blessed is the one who comes in the name of the LORD;
We have blessed you from the house of the LORD.
The LORD is God, and He has given us light;
Bind the festival sacrifice with cords to the horns of the altar.
You are my God, and I give thanks to You;
You are my God, I extol You.
Give thanks to the LORD, for He is good;
For His lovingkindness is everlasting.
Psalm 118:24-29 (NASB)

Seventy-Seventh Day...

2008-05-05T04:58:00.004-05:00

You clothed me with skin and flesh, and knit me together with bones and sinews. You have granted me life and steadfast love, and your care has preserved my spirit.
Job 10:11-12 (ESV)

Good morning, the weekend was GREAT! I've continued to do really well with all my feeds. I have remained on 1 liter of pressure from the CPAP and I kept my body temp regulated. So, a very good weekend, PRAISE!! Today is my 77th day in the NICU! WOW, has it really been that long? God has been ever so faithful! Today I will have another routine head ultrasound to observe my brain and head region to make sure everything is still normal. Other than that there is nothing else set exam wise. One final note of interest about my weekend. My night shift nurse this weekend has been Scott, he's a really nice guy. Scott was a preemie and has a really different perspective on his job. I think that's really cool. Please pray for continued improvement and pray specifically for today's head exam. Thanks and Blessings, JSR.

Seventy-Sixth Day...

2008-05-04T06:08:00.005-05:00

The LORD appeared to him from afar, saying, "I have loved you with an everlasting love; therefore I have drawn you with lovingkindness."
Jer. 31:3 (NASB)

Greetings from the NICU @ BMC. I hope each of you is having a great weekend. My weekend has been event free thus far and pretty laid back. Yesterday I got to spend the whole day cuddling and hanging out with Mommy. Sometimes when we cuddle I get a massage, which is really relaxing. The other day a physical therapist (PT) who specializes in little people came by for a visit. While she was here she trained my Mom in the fine art of preemie massages. Let me tell you they are GREAT! If I'm stressed and my muscles all tensed up Mommy will give me a massage and turn me into a limp noodle. Yeah, massages are way cool. Lately my parents have been doing more of the normal care stuff for me when they're here. The nurses check on me often...all the time...but Mommy changes my diapers and clothes, takes my temp, adjust my positioning, and feeds me. Dad does his share when he's here, but work doesn't let him come as much as Mommy. He had to work yesterday, but he came by after work for some snuggle time. When I'm being held by Daddy I get a ton of kisses on the top the head.

Dr. Strange is the primary doc in the NICU this weekend. Yesterday she upped my feeds to a maximum of 60 ml per serving. Basically, getting just 45 ml of milk wasn't always enough food for me and I would get hungry before my next feeding. So, Dr. Strange changed the amount so I can get what I need up to 60 ml per feeding. Obviously, I'm doing really well with my feeds, PRAISE! Also, I'm still on 1 liter of pressure from the CPAP, another PRAISE! So, things are steadily progressing in the right direction. The staff says that I'm doing great and they're pleased with my progress. Of course we all know it's not me, but the work of the Great Physician. God continues to bless me above and beyond anything we could've dreamed. My folks are always saying how thankful they are for the grace God has shown us. Well, I'm gonna run so my nurse can get me started on my day. I hope everyone has a great time at worship. Y'all keep praying and I'll keep growing. Blessings, JSR.

Seventy-Fifth Day...

2008-05-03T05:58:00.003-05:00

Good morning all. This past week was a really good time for me. I have continued to make good progress in all areas and seem to be right on track. I'm doing a good job of taking my feeds. I'm learning that I can't get ahead of myself when I eat. So, I'm eating slower, but probably still a little too fast at times, but you gotta eat while it's there, LOL. My breathing efficiency is still improving and I'm still on 1liter of pressure, which is really good news, PRAISE! The weekend looks to be pretty lazy as there is nothing special planned for me. Please continue to pray for the usual requests: breathing, strength, stamina, and good feeds. My nurse, Heather, is here to get the day started, so I'm gonna run for now. Thanks again!! Blessings, JSR.

Are there any gods like you, LORD?
There are no gods like you. You are wonderfully holy, amazingly powerful, a worker of miracles.
Ex. 15:11 (NCV)

Seventy-Fourth Day...

2008-05-02T04:59:00.008-05:00

Hello everybody, the weekend is almost here! Of course all my days are pretty much the same except that on the weekends my folks get to spend more time with me. I had a really good Thursday and continue to inch closer to getting outta here. Yesterday they cut back my O2 pressure rate to 1 liter. This means that if I can maintain my stats at this rate then I will be one BIG step closer to breathing 100% on my own. So far I am doing just fine, but I'll have to maintain it for at least a day or two before I'll impress the docs. So, pray for this specifically. My feeds are still going well and everything seems to be going well with my body temp. God has really been gracious!! The coolest thing that happened yesterday was I had an unexpected visitor. My uncle David came by for a visit. He lives in Atlanta but was in town for the day, so he came by for a visit and dinner with my parents. It was cool to meet him. He's gonna get me some cool shades when I get older, Sweet! Well, it's time to start the morning routine. I'm gonna run. JSR, out.

I will praise you, LORD, with all my heart;
I will tell of all the marvelous things you have done.
I will be filled with joy because of you.
I will sing praises to your name, O Most High.
Psalm 9:1-2 (NLT)

Seventy-Third Day...

2008-05-01T04:30:00.003-05:00

Good morning! I had another good day on Wednesday followed a relaxed evening. I'm pretty much the same as yesterday, PRAISE! I'm still tolerating the new feeding schedule and taking my milk without issue. I continue to make a lot of poopy diapers, which is good. My breathing is improving little by little. Like I've said before, almost all preemies seem to have at least one issue that takes a while to get straight. Mine is breathing 100% on my own. I'm not sick or struggling to breath. It's just that last little bit that's been a long time in coming. My caregivers say this is normal for little guys born as early as I was. So, we'll keep taking things as they come and it will come together in the Lord's time. After all, I'm still supposed to be in the womb. Please continue to pray for continued progress in feedings, strength, stamina, breathing, and overall health. Thanks for all your prayers and love. Blessings, JSR.

But I will hope continually and will praise you yet more and more.
Psalm 71:14 (ESV)

Seventy-Second Day

2008-04-30T04:28:00.008-05:00

Hello from my crib on the back wall of the NICU. As you can see in the picture I have had no trouble getting adjusted to life in the open air. My nurses keep me bundled up tight so I won't get cold. They joke with me about being a burrito, LOL. Yesterday was a good day. I slept, ate (bottle & nursed), pooped, and got to snuggle with Mommy. All in all a really good day! I'm still doing well with all my feeds and the new schedule hasn't upset my tummy, PRAISE! Sometimes a major feeding change can play tricks on a little person's stomach, but I'm good. My breathing is still good. God granted us another good and uneventful day and we are truly thankful for each and every one of them. That's about it for this morning, but if I get a chance I'll try to check back in later. We're just starting the morning regiment so I'm gonna run. May the presence of Christ be real to you all today. JSR, later.

The Lord is good, a stronghold in the day of trouble; he knows
those who take refuge in him.
Nahum 1:7 (ESV)

Below is a video for Aunt Twyla and Uncle Everette, but anyone is welcome to watch. See how much bigger I am! Mommy shot it while we were snuggling. It's short, but I hope you enjoy it. I look forard to seeing you the next time you come over. Love, JSR.

Seventy-First Day...

2008-04-29T04:44:00.006-05:00

Good morning. Well it's the start of another day in the NICU. I had a good day yesterday and a smooth night. I've started nursing twice a day and things are going well. (I told you guys there would be no trouble getting Mom to fix it so she could be here to do it, LOL. But I'm sure you all knew that was a foregone conclusion.) I nurse at 1:30 and 5:30, which is a little out of the norm. Sometimes preemies get tired when they nurse twice a day if those feeds are back to back. It takes a lot of energy to nurse, which can wipe a little person out. I was able to nurse back to back without issue, PRAISE! Also, I was handling the 40 ml really well so they upped my feed amount to 45 ml. I ate it all without issue, another PRAISE! This will continue as long as I have the stamina for it. So, please pray for continued stamina and strength. The only special event on for today is my nurse will need to draw blood for some routine labs. I continue to make steady progress in the breathing area, PRAISE! Lung development is always a slow go for preemies. So, this long process is normal and to be expected. This past Sunday my folks had a sit down with Dr. Strange. She assured them that I am doing GREAT and everything is progressing nicely. I still have a few hurdles to jump, but so far I've been able to meet every challenge. Through this whole experience God has been there strengthening and sustaining me. All the PRAISE and THANKS go to Him for bringing me to this point. Anything I've needed He's provided and I know he will continue to do so. Y'all keep praying and I'll keep growing. Have a great day! JSR, out.

As for man, his days are like grass; he flourishes like a flower of the field; for the wind passes over it, and it is gone, and its place knows it no more. But the steadfast love of the Lord is from everlasting to everlasting on those who fear him, and his righteousness to children’s children, to those who keep his covenant and remember to do his commandments.
Psalm 103:15-18 (ESV)

Seventieth Day...

2008-04-28T04:57:00.003-05:00

Ask, and it will be given to you; seek, and you will find; knock, and it will be opened to you. For everyone who asks receives, and the one who seeks finds, and to the one who knocks it will be opened. Or which one of you, if his son asks him for bread, will give him a stone? Or if he asks for a fish, will give him a serpent? If you then, who are evil, know how to give good gifts to your children, how much more will your Father who is in heaven give good things to those who ask him!
Matt. 7:7-11 (ESV)

Good day to everybody, I had a great weekend. My breathing stuff is improving and I am doing really well with my feeds. Dr. Strange was on this weekend, so I was in good hands, but I'm always in good hands. It was really relaxed around here, which is always good. Yesterday went well in all areas and I have settled into life in the crib. My feeding schedule changed again. Now I get 40 ml per serving every four hours and I can feed twice a day by nursing if Mommy is here. I don't think getting her here will be a problem, LOL! One of the coolest things that happened is they started letting my parents feed me the bottles. Up until now one of the nurses has been feeding me my bottles, but today they said my folks could do the feedings. My Mommy declined because she wanted my Dad to be the first one of them to give me a bottle. She gets to nurse and wanted him to give the first "parent" bottle. It was really sweet of her to want my Daddy do that and he did great at making sure I didn't eat too fast. A funny thing happened yesterday. There was a cart they needed that had a jammed drawer. So, Dr. Strange gave a look to my Dad and asked if anyone could fix it. My Daddy fixed it up real nice. A few minutes later she returned with this box of really expensive chocolate and told him to pick the one he wanted. (Apparently Dr. Strange doesn't just give away her chocolate.) One of the nurses remarked that you know you've been here a while when Dr. Strange puts the parents to work, LOL. There is nothing special on for today, so we'll take things as they come. God granted us a great weekend and he continues to be ever so gracious and faithful to me on my journey. Pray for continued success in feeding, continued improvement in my O2 rate, strength, and stamina. I hope everybody has a blessed Monday! JSR, out.

Sixty-Ninth Day...

2008-04-27T05:37:00.006-05:00

For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life. For God did not send his Son into the world to condemn the world, but in order that the world might be saved through him. Whoever believes in him is not condemned, but whoever does not believe is condemned already, because he has not believed in the name of the only Son of God.
John 3:16-18 (ESV)

Greetings and good morning from the NICU. It's hard to believe I've been here 69 days. I'm doing well and am having a great weekend. The staff has been adjusting my CPAP so that I am required to do more work in maintaining a good O2 rate. They've also been monitoring my body temp to observe how well I can maintain it. I must be responding well, since they moved me to an open crib late yesterday evening. This is a big step! If I can keep my temperature regulated then I'll be one step closer to going home. If I can't keep my temp regulated, it won't be a huge set back health wise, but it would be disappointing. If I need to make a return trip to an isolette they'll just let me grow a little more and try again. So, we are progressing in a positive direction. I'm fully immunized, don't have any tubes, get held everyday, and am learning the art of nursing. Life could be worse! God has been so good to me. I've had a couple of persistent issues, but nothing like some of my roomies are dealing with. My folks thank God everyday for the grace he has shown us. Today will be a lazy Sunday unless something comes up, which is always a possibility with preemies. We're still approaching each day with the attitude of begging God for a good day today and worrying about tomorrow later. I haven't journeyed out of the woods yet. If I was, I'd be out of the NICU- but I'm working on it. Please continue to pray for my ability to breathe on my own, good feeds, strength, body temp, and stamina. I hope everyone has a great time of worship today. Blessings, JSR.

Sixty-Eighth Day...

2008-04-26T16:09:00.001-05:00

Hello from the NICU. I hope everyone is having a great weekend. My weekend has gone really well so far. I've continued to tolerate my feedings and my breathing is steadily improving. I am getting less help from the CPAP and when I do need a little help, it doesn't help as much as it once was. So, we are still making strides, PRAISE! If I continue to make progress then we'll see how I do in an open crib. That would be a HUGE step! So, things are going well. I'll make sure to keep you guys updated on the latest info. I'm gonna go so I can cuddle with Mommy and get my next feeding. JSR, out.

Sixty-Seventh Day...

2008-04-25T06:26:00.002-05:00

Hello and good morning. It's been a really good week and we're praying for a great day today. I had a good day yesterday and an uneventful night. I did get a little tired form my shots, but there were no negative signs from my shots, PRAISE! I continued to improve at getting my food from a bottle. I'm also gradually getting the hang of nursing. My problem isn't knowing what to do, but I still try to eat too fast. My breathing is better and yesterday was another step in the right direction. It seems that I am doing a pretty good job of regulating my body temp. Today they might see how I do in an open crib. Up until now I've been staying in a temperature controlled isolet unless I'm being held. So, today could be a BIG day! We'll see if I'm ready for this environmental change. Pray that I continue to improve in these areas and that the staff gets a good read on whether I'm ready for open air or not. It's no BIGGIE if it's too early, but it would be a step closer to going home. I'll let you guys know how it turns out. Have a great day! Blessings, JSR.

Sixty-Sixth Day

2008-04-24T06:23:00.007-05:00

“Behold, God is my salvation; I will trust, and will not be afraid; for the Lord God is my strength and my song, and he has become my salvation.”
Isa. 12:2 (ESV)

Hello everybody, I hope all is well. Wednesday I had another good day and night. I continued to gradually improve my breathing issues, PRAISE! Breathing is the biggest hurdle for many preemies. A bunch of other stuff your body does depends upon you being able to breath consistently and efficiently. My feeding schedule was changed again to all my feeds being by bottle, PRAISE! I no longer have the OG tube, PRAISE! It's good to be able to close my mouth without a tube sticking down my throat. So, from now on I will get my food by bottle or nursing. The nursing will continue at the rate of one feed per day until I master the art of natural feeding. I still try to eat way too fast, but they are working with me on slowing down. My Mommy says I get that from my Daddy. He always eats too fast, LOL. Last night I got my final immunization shots and show no ill effects from them, PRAISE! If I make it through the next couple of days without issue then I made it through without getting sick. It's not uncommon for little dudes to get a slight fever from their shots. Another big thing that happened on Wednesday was I had my first developmental exam. A specialist came by and spent a some time checking my hearing, reflexes, motor skills, and strength. I passed with flying colors! My hearing is excellent and I'm strong for my size. The specialist said she was "impressed" with my strength and determination, PRAISE! God continues to shower me blessings and cover me with grace! As you can see yesterday was a HUGE day for us. Everything is going extremely well and we are so very thankful for God's grace and provision! I'm still not out of the woods, but I am making great progress on my journey. Keep praying for improved breathing, strength, no ill effects from shots, and good feeds. Thanks for remembering me in your prayers! I'll check back in later. Blessings, JSR.

Sixty-Fifth Day...

2008-04-23T06:33:00.002-05:00

Greetings from the NICU @ BMC. I've had a really good day and night. Yesterday I continued to show no ill effects from my vaccines, PRAISE! Often preemies get a little sick after getting vaccinated, but I'm good. I have one more round of shots to go, so pray they go as well as my others have. My feeds continued to go well and my nurses kept alternating between OG tube feeds and bottle feeds. Of course, one of those bottle feeds was nursing in the afternoon when Mommy was here. This schedule will continue for a few more days, which is not a bad thing. I have maintained my pace in breathing improvements, PRAISE! My doc thinks I'm ready to come off the Albuterol and my Vibro-therapy is going to be discontinued. Albuterol is a medicine given to preemies and asthmatics to assist them in breathing. I have been taking it for about a month. Vibro-therapy is a treatment that Respiratory Therapists (RT's) administer for chest congestion in preemies. Sometimes we little people have trouble coughing up all the saliva we produce. When this happens the trapped saliva collects in the chest and throat making breathing more difficult. To combat this a RT, or nurse, will gently tap you on the back using a long wand with a padded end. This loosens up the stuff you can't cough up so it can be extracted. It sounds like they're really beating you, but it's all sound with no furry, LOL. My Dad told Candy, one of my RT's, he was gonna call DHR if she didn't quit, LOL. It will be good if I can stay off the Albuterol and not need any further Vibro-therapy. We still have a ways to go, but we are heading in the right direction, PRAISE. Keep remembering my breathing in your prayers. Thanks! Today we're praying for continued improvement in all these areas. I'm gonna run so I can get my morning exam done. I'll chat more later. BTW, My Mommy really likes the outfit I'm wearing in this picture. It was a gift from some great friends in Decatur, Lyne & Stewart Bennett. JSR, out.

“Remember these things, O Jacob,
And Israel, for you are My servant;
I have formed you, you are My servant,
O Israel, you will not be forgotten by Me.
"I have wiped out your transgressions like a thick cloud
And your sins like a heavy mist.
Return to Me, for I have redeemed you.”
Shout for joy, O heavens, for the LORD has done it!
Shout joyfully, you lower parts of the earth;
Break forth into a shout of joy, you mountains,
O forest, and every tree in it;
For the LORD has redeemed Jacob
And in Israel He shows forth His glory.
Isa. 44:21-23 (NASB)

Sixty-Fourth Day...

2008-04-22T09:14:00.002-05:00

Sorry guys, but I only have time for a quick update this morning. I had a great day yesterday and an uneventful night. My stats really stabilized after I got my blood boost. Last night I got all the vaccines new babies get and I didn't even cry when they gave me the shots. I am still taking my bottle feeds "like a champ" or that's how the nurses describe the way I eat, LOL. I am a fast eater, actually too fast. Please continue to pray for continued improvement in breathing, feeding, stamina, and strength. I'll check back later in the day. Blessings, JSR.

Sixty-Third Day...

2008-04-21T05:22:00.005-05:00

Hello guys, I hope everyone's weekend went well. All in all I had a pretty good weekend. Yesterday afternoon was a little rough. I was having trouble keeping my stats up and I kept falling asleep during my feedings. Mommy and Joy, my nurse, tried a few things to keep me awake so I could feed to no avail. Then Joy checked when my next hemoglobin test was due. (This is a test that checks my blood count.) I was to have one on Tuesday so she went ahead and ordered it for yesterday. The test revealed that I was running a quart low, LOL. So, they gave me a boost (transfusion) and I perked right up. If you've ever had a low blood count then you know it just saps you of any energy. It's the same for little dudes too. However, the blood deal wasn't the rough part of the day. The rough part was I had an upset tummy. It's normal for babies to have an upset tum tum every now and then. I just couldn't get comfortable. It was like eating bad Mexican food, LOL. I think this was my first tummy ache. I'll tell you one thing, all the firsts in life are not great experiences. Also Meme and Pop came up for a visit, which was cool. So, my day was pretty normal for a baby. You know, even a tummy ache can be a good sign. It's good to have "normal" baby issues (like a tummy ache) to deal with that don't mean anything serious, even if it's not very pleasant :=) I continue to make gradual improvements in my breathing, feeding, stamina, and strength, PRAISE! My feeding schedule has been modified so that I will alternate between an OG tube feed and bottle feeding. Once a day one of the bottle feeds will actually be a nursing feed. So, we are making strides, PRAISE! It's so amazing how God has moved me along through this whole process. I can't over state how gracious he has been to me on my journey. We have not had to deal with many major issues and my care givers have been GREAT! Also, thanks to y'all for your prayers and support. Well, I'm gonna run as it's time for me to get started on my morning routine. Y'all keep praying and I'll keep growing. JSR, out.

Nebuchadnezzar the king to all the peoples, nations, and men of every language that live in all the earth: “May your peace abound! “It has seemed good to me to declare the signs and wonders which the Most High God has done for me.
“How great are His signs
And how mighty
are His wonders!
His kingdom is an everlasting kingdom
And His dominion is
from generation to generation.
Dan. 4:1-3 (NASB)

Sixty-Second Day...

2008-04-20T07:33:00.003-05:00

Greeting y'all, I've had a great weekend thus far. Yesterday was another good day and last night went smooth. Yesterday was really relaxed around here, which is rare. I had some friends of my folks drop in for a quick visit. The Corns, Dennis & Siggie, came by about mid afternoon. Mrs. Siggie and Mrs. Debbie (aka. Diva) painted my nursery for us. I hear it looks great! Later in the afternoon the Leathers , Ed and Kathy, stopped in for a short time. They gave me this cool CD that has traditional/classic children's songs with my name substituted in them- really cool! I nursed for the second time yesterday and got 16 ml on my own and they supplemented the rest with a bottle. Sixteen is pretty good for only my second time. Everyone was real impressed, LOL. They've adjusted my feeding schedule to where I now nurse once a day, take two bottles a day, and the rest of the time I'll be fed through the tube. Step by step we're getting there! My parents are still subscribing to the one day at a time philosophy, which is wise. Although I've been doing extremely well things could still take a turn in the other direction. It's like that with preemies. We'll just take things as God brings them to us because, no matter what, he is faithful, and his grace always abounds. Today's emphasis will be on continuing to improve my strength, stamina, O2 rate, and feedings. It's time to get into the day so I'm gonna run for now. Blessings, JSR.

Sixty-First Day...

2008-04-19T06:09:00.007-05:00

Well, the weekend is finally here. I hope everyone enjoys a couple of days of rest and relaxation. The weekends in the NICU are pretty much the same as the rest of the week. In NICU-land the important thing is the number of days rather than the specific date or day of the week. Although yesterday's date was significant as it was my two month "birthday." Mommy made a couple of cakes for the NICU staff to celebrate the occasion and to thank them for their GREAT work. They all said it was yummy! You'd think that I'd get a little bit since they're celebrating me and my progress, but it's all good. All the cake goes to the workers and all the glory goes to God, as it should. I wonder if my folks will give me a monthly "birthday" party when I get home? Uh...not betting on that one, LOL. I've had a good week and hopefully that will continue. The Lord has truly been faithful and ever so gracious to me and my family. Yesterday I took my first shot at nursing, which is a HUGE step! The lactation specialist told Mommy I did great and she was proud of me. A lot of little people my size have trouble when they start trying to feed naturally. I didn't experience any of those issues, PRAISE! I was able to get 5 cc (ml) of milk on my own. The plan is for me to nurse once a day and see how things progress. My first attempt at natural feeding really tuckered me out. Nursing requires a lot of strength and stamina because you have to be able to breath and obtain the milk orally, all at the same time. Sounds easy, but when you're my size it's a little tougher. Pray that everything goes well and I am strong enough to do the job. Also pray that all goes well for Mommy during this process. My breathing has been good and I'm still doing well with my bottle feedings, PRAISE! I'm now feeding once every 12 hours by bottle, once a day by nursing/OG, and the rest by my OG tube. I'm still at 30 ml per serving every three hours, but now I'm feeding three different ways. COOL! I'm about to get started on my morning routine so I'm gonna run for now. Y'all have a great day! Blessings, JSR.

Like newborn babies, you must crave pure spiritual milk so that you will grow into a full experience of salvation. Cry out for this nourishment, now that you have had a taste of the Lord’s kindness.
1 Peter 2:2-3 (NLT)

Sixtieth Day...

2008-04-18T05:03:00.005-05:00

Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers.
3 John 2 (NKJV)

Good morning y'all. I hope everyone has a good Friday as we head into the weekend. I had a good day yesterday and pretty good night. I took another bottle yesterday and there were still no issues, PRAISE! My nurses are going to start offering me a bottle every shift (12 hrs.) rather than one bottle every 24 hrs. If I take and can tolerate it then this will continue, but if I have issues or simply don't want it then they'll just try again later. Last night my nurse, Robin, tried to give me a bottle, but I was sleepy and didn't give much effort. She had just weighed me and given me an exam and I was a little tuckered out. It's ok, that's to be expected...they'll just try again later. As long as the issue is my energy and not a lack of strength or my inability to obtain the food from the bottle it's alright. There's a difference between being tired and not being strong enough to accomplish a task. My O2 is improving and I continue to gain weight at a good pace. As usual, Mommy and I had a good time snuggling in the afternoon. That catches you guys up on the latest info. Today our focus will be consistent improvement in breathing, feeding by bottle, strength, and stamina. Please pray for these things as the Lord leads. I've gotta run so they can give me the customary morning exam. Blessings, JSR.

Fifty-Ninth Day...

2008-04-17T04:25:00.009-05:00

Rejoice in the Lord always; again I will say, Rejoice.
Let your reasonableness be known to everyone. The Lord is at hand; do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.
Phil. 4:4-7 (ESV)

Good morning, the day before yesterday was a big day because we got to move out of the middle. Well, yesterday was my first full day after the move and I started getting settled into my new space. It's a little darker, cooler, and quieter in our new location. The middle is where most of the action is so it has more lights, electronics, computer and monitoring devices, medical equipment, and people; all of which contribute to heat and noise. It's like we moved from downtown to the suburbs. Yeah, we like our new place. Another big thing that happened late yesterday afternoon was I took my first bottle. It was cool!! My nurse, Mindy, came over to me and Mommy and asked, "Are we ready for our afternoon snack?" Mommy said, "I think we're ready." To which a smiling Mindy replied, "What about a bottle?" So, I had my first bottle. (Below is a video clip of a portion of the experience.) I took the whole thing without issue, a very good sign for a preemie taking their first bottle, PRAISE! It's hard work trying to get that milk out of that bottle when you're used to it being poured in you through a tube, LOL. A nurse will give me my first few bottles to make sure I'm all good. When the staff is satisfied that I can take a bottle consistently then Mommy and Daddy will get to feed me by bottle. The next step would be nursing, which Mommy is really looking forward to, but we're not there yet. Another cool thing about today was my Meme and Pop came up for a visit. As usual Mommy and I had our time together, which was the highlight of my day. Obviously, today was a good day! I have been here (living in the world) for a little less than two months and already God has been more gracious to me than I will ever deserve! Grace is truly amazing. Enjoy the clip. JSR, out.

Fifty-Eighth Day...

2008-04-16T04:13:00.007-05:00

How precious to me are your thoughts, O God!
How vast is the sum of them!
If I would count them, they are more than the sand.
I awake, and I am still with you.
Psalm 139:17-18 (ESV)

Greetings from my new address on the outer wall of the NICU! PRAISE!!! It happened late yesterday afternoon. This only happens when your caregivers feel that you're ready to be moved from among the most critical babies. All the babies in the NICU are said to be in "critical" condition, but those on the outside looking in are the most stable. My Mommy and Daddy are really excited. This is an answer to prayer and we are so very thankful for the grace God has shown us. I don't know how much longer I'll be here, but this puts me another step closer to going home, ;=). We are still taking things one day at a time; begging God for a good day today and worrying about tomorrow when it gets here. The rest of my day was good and everything continued on course. My breathing improved and I am still tolerating my feedings without issue. Today's focus will be to keep up the good work. Pray that I can continue to make strides with breathing efficiency, weight gain, strength, stamina, and maintaining my body temp. Thanks again for all the prayers and support. Y'all keep praying and I'll keep growing. Love ya, JSR.

Fifty-Seventh Day...

2008-04-15T05:33:00.007-05:00

Hello and good day, I hope everybody had a good start to the week. I had a pretty good Monday. The day went well without anything out of the norm popping up. My stats remained consistent throughout the day and night. My feeds were increased to 30 ml per serving and I have been digesting all of it without any residual. All my parts seem to be working as God intended and my breathing continued to improve. It was a pretty quiet day in the NICU, which was a nice break from some of the "chaos" we've been experiencing. My nurse last night was Kelly. When I first arrived she was a student nurse working with a supervising nurse. Now she's flying solo! She's great! I behaved really well and didn't have a single issue of any kind. She gave me a big ol' bath and now I smell really good. My Mommy will really like that when she holds me later today. So, as you can see we have many reasons to offer God thanks and PRAISE, but that's true every day. Today we'll work on continuing to get stronger and gain more stamina. Y'all keep praying and I'll keep growing. Blessings, JSR.

Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us, to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen.
Eph. 3:20-21 (ESV)

Fifty-Sixth Day...

2008-04-14T05:42:00.006-05:00

"I will say of the LORD, He is my refuge and my fortress: my God; in him will I trust."
Psalm 91:2 (KJV)

Greetings y'all, I hope your weekend was as enjoyable as mine. I've an excellent two days and am gearing up for another week. Today marks two months that I've been here. WOW...that doesn't seem possible! In a way it seems like I've been in the NICU longer than that, but in another way it seems like I just got here. In eight weeks I've changed a lot and made a huge amount of progress. My heavenly Father has been SO gracious to me and my family! It's really humbling to think about how good God has been to us.

Today's goals the same goals we've had for the last couple of weeks. Please remember to pray for improved breathing efficiency, continued success with feedings, strength, and good lab reports. BTW Dr. Mena has upped my feeds to 29 ml every three hours and I'm tolerating them well, PRAISE! I'm getting to the point to where a nurse actually mentioned my moving out of the middle. (Remember, the most critical cases reside in the middle rows and the more stable babies are on the outer walls.) We're not there yet, but it could happen in the not too distant future. I just need to stay the course and keep getting stronger. We're still taking things one day at a time, begging God for a good day today. We'll worry about tomorrow when it gets here. Thanks again for your prayers! I'll talk to you later, it's time for my morning exam. I hope Christ is very real to you today. Later, JSR.

Fifty-Fifth Day...

2008-04-13T07:59:00.009-05:00

Hello and good morning y'all. I hope everyone is having a great weekend. I know I didn't post yesterday, but the day just got away from me. Do you ever wish God would occasionally put a couple more hours in a day? Oh well, I digress...I had another good day. All my labs and stats are good and slowly getting better, PRAISE! My breathing is still improving, slowly but surely. We'll take that over the alternative! My feedings are still going well and I am digesting all my food each time, PRAISE! There were a bunch of guests in the NICU today visiting one of my roomies. He's not doing well and his family is spending every minute they can with him. I know his family would appreciate any prayers for him. I can't give you the name, gotta love HIPAA, but God knows who he is. Every time one of my little buddy's gets sick I am reminded of how gracious God has been to me. I think, why not me? It's like I can't comprehend why He's so good to me. Do you ever think that? David was right, the Lord truly is my Shepherd.

My Meme and Pop visited today and the Wyatt's came by a little before closing time. It seems there was a party this morning. Daddy told me it was for Mommy's friends to give her gifts to help them care for me and to celebrate my birth. Sounds like a good time, but if I'm the one being celebrated you'd think I would get an invite, at least. Dad said to get used to that because it ain't changing, LOL. I'm sure I'll get acquainted with all my new stuff when I get home. Anyway, thanks for having a party for my Mommy. I could tell she enjoyed it by her demeanor. She was all smiles today. I'm gonna run for now. I hope everyone has a blessed time at worship. Later, JSR.

The LORD is my shepherd;
I shall not want.
He maketh me to lie down in green pastures:
he leadeth me beside the still waters.
He restoreth my soul:
he leadeth me in the paths of righteousness for his name’s sake.
Yea, though I walk through the valley of the shadow of death,
I will fear no evil:
for thou art with me;
thy rod and thy staff they comfort me.
Thou preparest a table before me in the presence of mine enemies:
thou anointest my head with oil;
my cup runneth over.
Surely goodness and mercy shall follow me all the days of my life:
and I will dwell in the house of the LORD for ever.
Psalm 23 (KJV)

Fifty-Third Day...

2008-04-11T20:54:00.004-05:00

Good evening from BMC. I know I'm a little late getting this update posted, but it's been a really busy day. The Lord graced us with another good day. I had an Xray and everything looks to be as it should be, PRAISE! My labs were good and my stats weren't too far "out of whack" (highly technical medical phrase that means, OK). Dr. Mena adjusted my feeds to a whopping 28 ml per serving. I have been doing a real good job of digesting ALL my food, so he upped the amount again. If you're keeping count that's three ml in less than 48 hours! PRAISE! I was scheduled to have an eye exam this afternoon, but the eye specialist was late for some reason. I guess that will happen later tonight or tomorrow. That's the reason my eyes are so big in this picture. My nurse, Christine (aka "Mrs. Utah"), had just dilated them before this picture was taken. This afternoon was all about family as I cuddled with Mom and Dad came home from his trip, it was good to see him. We all hung out together and it was good! I think that catches you up on the latest news. I'm gonna go hit the rack and get some sleep, little dudes need their rest. JSR, out.

"For God hath not given us the spirit of fear; but of power,
and of love, and of a sound mind."
2 Tim. 1:7 (KJV)

Fifty-Second Day...

2008-04-10T17:31:00.002-05:00

Good evening from the NICU. Sorry I didn't get to update everyone this AM, but sometimes circumstances get in the way. I had a good day yesterday, a uneventful night last night, and a great day today. God has been ever so gracious!! My feeds have been upped to 27 ml every three hours and I'm tolerating them just fine, PRAISE! I'm still showing gradual and consistent improvement in my breathing, PRAISE! My labs remain good and I still get to cuddle with Mommy every afternoon, PRAISE! As you can see we have many reason to be full of praise. My caregivers continue to provide me with the best of care and God remains faithful. He has truly been my Good Shepherd as I continue on my journey. Please pray for strength, stamina, good feeding, and improved breathing. Thanks for all the love, prayers, and support!! In the words of Tennessee Ernie Ford, "Bless your little pea pickin' hearts!" JSR, out.

Fifty-First Day...

2008-04-09T05:39:00.003-05:00

...Be strong and courageous. Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go.
Joshua 1:9 (ESV)

Good morning from BMC. Yesterday was another good day along my journey and last night went great as well. My feeds are still at 25 ml per serving and I am still on the Nasal Cannula, PRAISE! My stats are looking better. I have always been one whose stats would bounce around from a little high, to a bit low, to smack dab in the middle. However, last night my stats were more consistent and the range was more narrow, PRAISE! This is possibly a sign that my breathing efficiency is close to turning the corner, which is good news. Keep praying for my breathing issues to continue steady improvement. The next few days could be BIG if my efficiency improves allowing my O2 saturation rate to reach the normal room air level. Right now I'm getting some assistance from the CPAP through the NC. The next step is for the amount of help given by the CPAP to gradually decrease. This will happen as my body continues to process the air I breath in more efficiently. So, pray that my ability to get all the goody out of the air will improve. The day my breathing is done 100% by me will be HUGE for my development. Thanks to everyone for your faithfulness to keep up with my status and pray for my specific needs. I'm gonna got for now as the day is off to fast start. Continue to pray for strength and stamina. Blessings, JSR.

Fiftieth Day...

2008-04-08T05:27:00.005-05:00

Good morning everybody. Yesterday and last night both went really well. I have been able to remain on the Nasal Cannula without having to go back to the CPAP mask, PRAISE! My feeds have been increased to 25 ml every three hours and I continue to tolerate them without issue, PRAISE. So, my breathing has been steadily improving and my feedings continue to be great! Another positive was that Mommy and I enjoyed another daily cuddling session, which is always a thrill. God continues to bless me with improving health, PRAISE!! We are so thankful for the way my body has gained strength and how the setbacks have been few and far between. This type of progress is the work of God through those he has gifted in many special ways. Again, my family and I are taking things one day at a time. We fully understand that things are always subject to change, but we're amazed at how good God has been to us. Please continue to pray for strength, stamina, and continued progress. In the future I will have to regulate my own body temp and other things, but we'll deal with each of those at the appropriate time. Please remember my Daddy in prayer. He's out of town this week and won't return until Friday afternoon. Pray that Jesus remains close to him and that he doesn't worry about me too much. Thanks for all your love and support! It's time to get my morning routine started so I'm gonna run for now. Later, JSR.

Ask, and it will be given to you; seek, and you will find; knock, and it will be opened to you. For everyone who asks receives, and the one who seeks finds, and to the one who knocks it will be opened. Or which one of you, if his son asks him for bread, will give him a stone? Or if he asks for a fish, will give him a serpent? If you then, who are evil, know how to give good gifts to your children, how much more will your Father who is in heaven give good things to those who ask him!
Matt. 7:7-11 (ESV)

Forty-Ninth Day...

2008-04-07T05:13:00.004-05:00

And it is impossible to please God without faith. Anyone who wants to come to him must believe that God exists and that he rewards those who sincerely seek him.
Heb. 11:6 (NLT)

Hello and good morning. I hope everyone had as good a weekend as I did. Yesterday went fairly normal with one notable exception, I wore clothes for the first time. Joy, my nurse, dressed me in a white snap up shirt made for little babies (see pic). She surprised my folks with it when they arrived. Mommy was really happy about it, but Daddy was like, ok he's wearing a shirt. Mommy has wanted to dress me since I passed the 1,250 gram mark, LOL. The rest of the day was fairly normal. I got a blood boost late yesterday afternoon. Dr. DiCarlo has increased my feeds to 24 ml per feeding and I continue to tolerate my feeds really well, PRAISE! As of 5 AM this morning I weighed an even 3 lb. and was 40 cm. long, PRAISE! I still get little tweaks added to my feedings that serve as nutritional supplements. It's like when someone takes a daily vitamin for better nutrition. The only other news of note is that I have been on the NC (Nasal Cannula) exclusively since yesterday around 2 PM. If I can stay on the NC without having to revert back to the CPAP mask I'll be one step closer to normal breathing. Pray for strength, stamina, and breathing efficiency. Well, that's all the news and it's time for my morning physical. I'll talk to you later. Y'all keep praying and I'll keep growing. Blessings, JSR.

Forty-Eighth Day...

2008-04-06T06:05:00.007-05:00

When they said, “Let’s go to the house of God,”
my heart leaped for joy.
Psalm 122:1 (The Message)

Good morning y'all, I had another good day and night. Dr. DiCarlo spoke with my parents yesterday afternoon and he said everything is looking good. We're moving forward at a slow but steady pace, which is good. I have taken my last dose of Lasix, so we'll see if that takes care of my slightly swollen feet. Yesterday evening Joy, my nurse, gave me a little extra Sodium in my feed as one of those "tweaks" I told you about. Other than that the only other news is I'm up to 23 ml per serving on my feeds, yummy! I did have some visitors early last evening, the Wilson's. They live up the street from us and their huge chest freezer is storing Mommy's milk, which I will one day be consuming. Obviously, the Wilson's have a special place in my heart, LOL. I really like Mr. Wilson's hat! I know the posts have been repetitive lately and I'm glad, it means I'm on the right track. If they read like a script from Days of Our Lives then I'd be concerned, LOL. So, everyone keep praying as you have been. It's very comforting to know that while God is working in my body he's also working in your hearts to pray for me. He's so the MAN!! I hope you guys have a great time at worship as you celebrate our awe inspiring God and our great Savior. Blessings, JSR.

Forty-Seventh Day...

2008-04-05T08:24:00.007-05:00

Unless the Lord builds the house,
those who build it labor in vain.
Unless the Lord watches over the city,
the watchman stays awake in vain.
It is in vain that you rise up early and go late to rest,
eating the bread of anxious toil;
for he gives to his beloved sleep.
Behold, children are a heritage from the Lord,
the fruit of the womb a reward.
Like arrows in the hand of a warrior
are the children of one’s youth.
Blessed is the man who fills his quiver with them!
He shall not be put to shame
when he speaks with his enemies in the gate.
Psalm 127 (ESV)

Hello, I hope everyone is keeping dry on a rainy Saturday morning. I had a good night last night. There were no major developments either way, which is good. Mommy spoke with Dr. DiCarlo yesterday and he is still pleased with where we are. The staff has cut back my chest Xrays to one every other day. My Xrays have been looking good so this is another positive step. My docs have told the nurses to start adding Iron droplets to my feeds to help my hemoglobin. There are no blood issues, but my caregivers are always making little "tweaks" to make sure I'm getting exactly what I need. They're all careful to make sure we little guys and gals get the best possible care. I have also started receiving Lasix every 12 hrs. to help with the swelling I mentioned earlier. It's not that I'm swelling up like a balloon, but the swelling wasn't reducing very quickly, so they're going to help it along. Again, a normal issue for little people like me in the NICU. Now, I think I've caught you up to the latest news. I really appreciate every one's concern!

A really cool thing happened today, my Grandpa Hal came from Atlanta for an afternoon visit. I hadn't seen him since the night I was born. He works with the Red Cross and own his own wood-turning business; he's a really busy man. Meme & Pop were also here. So, I had all my grand-parents here with me this afternoon, COOL!

Today's focus will again be on improving my breathing and continuing to have successful feeds. Pray for these things as the Spirit leads. I hope y'all have a great day. You keep prayin' and I'll keep growin'. Later, JSR.

Forty-Sixth Day...

2008-04-04T04:26:00.006-05:00

Good morning from the NICU @ Brookwood MC. I had another good night again last night. My feedings went well, and I'm still showing slow but steady progress in my breathing. Once I start breathing 100% on my own then my status may change to a "less critical" condition. Let me explain it this way. Every baby in the NICU, no matter what, is considered to be in a somewhat critical condition, that's why they're in the NICU. However, there are different stages of "critical condition." Just because a baby is in here doesn't mean they are in a life threatening state. Although all babies are more vulnerable to life threatening health conditions. Anyway, if your condition is serious then you are put in the middle rows of beds. If you're stable then you get placed on the outer walls of the NICU. So, the goal is to get kicked out of the middle. That doesn't mean you're free and clear, but you're doing really, really well. I hope I didn't confuse you with that, LOL. All these good night in a row are steps closer to that happening. Therefore, keep praying for boringly normal updates. I ask you to continue to pray for my breathing development, feedings, and digestion. God is so faithful and he has been better to me and my family than we deserve. Thanks so much for being instruments of God's provision and love!! Later, JSR.

For You formed my inward parts;
You wove me in my mother’s womb.
I will give thanks to You, for I am fearfully
and wonderfully made;
Wonderful are Your works,
And my soul knows it very well.
My frame was not hidden from You,
When I was made in secret,
And skillfully wrought in the depths of the earth;
Your eyes have seen my unformed substance;
And in Your book were all written the days
that were ordained for me,
When as yet there was not one of them.
Psalm 139:13-16 (NASB)

Forty-Fifth Day...

2008-04-03T05:29:00.004-05:00

Greetings from the NICU. I hope everyone had a restful night's sleep. Yesterday went well as I pretty much maintained my current pattern of growth. My feedings continued to be good and my digestion is still very good. My O2 saturation rate is holding at about the same level. I am making some progress in this area, but it's a slow grow, LOL. Dr. DiCarlo told Mommy that he's pleased with where we are and things are looking good. The next step for me breathing wise is to reach the point where I can ditch the CPAP mask and use the Nasal Cannula (NC) alone. Once I reach this point I may begin nursing and will no longer be fed through a tube, but "naturally" by Mommy. I'm no there yet, but I'm creeping up on it. BTW, she's already let it be known that she is ready when that time comes, LOL. I have some slight swelling in my lower legs and feet. This is a normal consequence of my lung issues and is not a major concern. If it gets worse they'll treat it, but this type of isolated swelling is very common for preemies with breathing efficiency issues. Today we'll continue the six hour rotation between the CPAP mask and the NC. Actually, the staff is not following a strict schedule on the NC. I stay on the mask for six hours, but when I'm on the NC they keep me on it longer, which helps me gain stamina. It's time for the morning diagnostic so I'm gonna run. Please continue to pray for my feedings, and breathing issues. I'll keep you posted as things change. God continues to bless us with good days and we're so very thankful. Remember to thank Him for all his gracious provisions when you pray. Blessings, JSR.

Forty-Fourth Day...

2008-04-02T04:50:00.005-05:00

This picture pretty much sums up what I did yesterday and last night, LOL. I basically slept and grew all day. It was busy around here with new babies and stuff, so I just chilled. There was nothing special set for me and there's nothing set for today. It will be good to have another day to just to be lazy. Mommy did get to hold me for a just a short time yesterday afternoon before they had to kick everybody out to admit some new babies. (They always ask the parents and guests to leave when admittng new babies in order to keep the chaos to a minimum.) It's good for preemies to have days like yesterday, they're a sign that everything is moving right along and there are NO major issues. We understand that could change, but we are so thankful to God for his grace and provision thus far. Pray for continued growth, stamina, strength, breathing, and good feeds. God is good all the time and all the time God is good. So true! Later, JSR.

"Therefore, as you received Christ Jesus the Lord, so walk in him, rooted and built up in him and established in the faith, just as you were taught, abounding in thanksgiving."
Col. 2:6-7 (ESV)

Forty-Third Day...

2008-04-01T04:28:00.004-05:00

I hear it's a stormy morning outside, but you can still have a good day, even during a storm. If I copied yesterday's entry and posted it as today's it wouldn't make much difference. We seem to have developed a pattern of progress, which isn't necessarily a bad thing. My body is continuing to do everything it needs to. It may seem that my breathing is still progressing really slow and maybe it is. But I am making measurable progress and that's good. Dr. Mena says he's pleased with where we are and how things are going. God is continuing to give me more strength, stamina, and growth. We'll just move along at his pace as it's His show and we are glad he's in control! Yesterday was another great day with my Mommy and Daddy. Mommy got to hold me kangaroo style plus Daddy got off early and was able to visit. He got to change a diaper for me just before they left for the evening. Also, Mommy went for her post delivery OBGYN appointment with Dr. Ross. He said she's doing great! So, we are all well and still taking it one day at a time. Please continue to pray for strength, stamina, breathing issues, and good feedings. Everybody keep doing what you're doing and I'll keep growing. Thanks again!! Love, JSR.

Forty-Second Day...

2008-03-31T04:41:00.005-05:00

Good morning, it's Monday and time to start another week. I was born on a Monday, therefore we count the weeks in the NICU as beginning on Mondays. This will be the sixth week of my journey and things are moving forward at a good pace. It's amazing to think of all the ways the Lord has provided for me thus far and I know he will continue to be faithful. All throughout the day yesterday they kept me on the NC (Nasal Cannula) to observe how I tolerated being off the CPAP mask. At some point last night I began to tire just a bit so they resumed the six hour rotation. Once they put the mask back on my stats returned to a normal range. So, I am back to rotating between the NC and the mask. They'll give me a couple of more days on the rotation and try again. All of this is normal and no one on the staff is surprised or worried by this. I continue to tolerate my feedings well and digestion remains good. Please pray for continued improvement in breathing mechanics and efficiency, good feeds, BM's, and stamina. There is nothing special scheduled for today, so the emphasis will be on getting me stronger. Y'all keep praying and I'll keep growing. Blessings, JSR.

"I can do all things through Christ which strengtheneth me."
Phil. 4:13 (KJV)

Forty-First Day (evening update)...

2008-03-30T19:02:00.012-05:00

Hey all, it's been a wonderful day in the neighborhood. I spent the day being held by my Mommy & Daddy. It was cool! Everything pretty much stayed the same as I reported this morning. So, no news is good...no great...news! Here are a few pics from the day, including one with Lee & Mona Silvey. The Silvey's are friends from our church, Community Presbyterian (PCA) in Moody, AL. Later, JSR.

Forty-First Day...

2008-03-30T06:39:00.004-05:00

I will greatly rejoice in the LORD, my whole being shall exult in my God; for he has clothed me with the garments of salvation, he has covered me with the robe of righteousness, as a bridegroom decks himself with a garland, and as a bride adorns herself with her jewels. For as the earth brings forth its shoots, and as a garden causes what is sown in it to spring up, so the Lord GOD will cause righteousness and
praise to spring up before all the nations.
Isa. 61:10-11 (NRSV)

A good Lord's Day morning to all. I hope you're having a swell weekend. There's not much new news to tell you, but I'll give you the latest. Robin was my nurse last night and she reported that I've had an uneventful evening. I'm still at 22 ml on my feedings and continue to do a fine job of digesting my food. The staff has kept me on the six hour rotation between the Nasal Cannula (NC) and the CPAP mask, which seems to be working really well. I am continuing to have steady BM's. My Xrays, labs, and morning physicals are still normal. One new thing that happened was I had my first eye exam yesterday. The doc said everything looked just like it was supposed to look. This was a relief for my folks since one of the potentially adverse effects of the ventilator is eye damage. It's not that the vent can make a preemie go blind, but it can cause issues with having 20/20 vision. As of right now, none of the potentially negative effects a vent can have on a preemie are showing up! This is subject to change, but the longer I go without anything showing up the less likely it is that I have suffered any negative consequences. This is a huge PRAISE! We are so very thankful to God for his grace in this area. So, you're all up to date. I should be able to get an afternoon update in later, Sundays are usually pretty lazy around here. Have a great time at worship! Blessings, JSR.

Fortieth Day...

2008-03-29T05:47:00.007-05:00

I hope everyone is having an enjoyable Saturday. I had another good day and night, thank the Lord. My nurse last night was Robin and she took really good care of me. Dr. Mena has upped my feeds to 22 ml every three hours and I am having "very little" residual. Once I get to 30 ml per serving my diet will be altered. We haven't discussed this with the docs other than it being mentioned in passing. We are all still focusing upon one day at a time. I am still on six hour rotations with breathing using the CPAP mask and the nose prong deal. FYI, I've been referring to it as the "nose prong deal," but the medical term is a Nasal Cannula (NC). Sorry I didn't clarify that earlier. Mommy and I snuggled for a good long while yesterday. My Dad tried to reach her several times but she was unavailable, LOL. He finally called the NICU and told them to have her call him when they could finally pry me from her arms, LOL. The holdings are really great!! Mommy really likes it and I always get a good nap. I want you guys to be in prayer for my Daddy. He's been working a lot of hours and hasn't been able to come visit much this week, he even has to work this weekend. He gets bummed out about it and feels like he's missing everything. So, pray for Jesus to be really close to him right now. I would really appreciate it. As far as prayer needs for me just keep praying for continued improvement in all the usual areas; breathing efficiency, feedings, stamina, and strength. I would like to close by once again thanking everyone who is praying for me. My folks have gotten tons of calls, cards, emails, and stuff from people everywhere letting us know they're lifting our family up. The other day we got emails from people in Texas, Iowa, New York, and California who are praying for us and they don't even know us. How cool is that?! I know I'm not the most critical preemie in the NICU and a big reason for that is prayer. So, THANK YOU!! Well, I've gotta go, time for the morning diagnostic. I hope you guys enjoy your day. Later, JSR.

Why do you say, O Jacob, and speak, O Israel, “My way is hidden from the Lord, and my right is disregarded by my God”? Have you not known? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint.
Isa. 40:27-31 (ESV)

Thirty-Ninth Day...

2008-03-28T05:02:00.005-05:00

"Now to him who is able to keep you from stumbling and to present you blameless before the presence of his glory with great joy, to the only God, our Savior, through Jesus Christ our Lord, be glory, majesty, dominion, and authority, before all time and now and forever. Amen."
Jude 24-25 (ESV)

Good morning all, I hope y'all rested well. My night went really well and I feel refreshed for the day. My nurse last night was Stephanie. It was her first time to care for me so I took it easy on her. Daddy called earlier and she said I was a real "sweetie." So, obviously I didn't play around with a loaded diaper or have a fit when she handled me, LOL. I'm still doing a good job of digesting my feedings, which remain at 21 ml per serving. However, they've added a growth medicine to each feeding to give me more calories in order to increase my growth rate. There's nothing wrong and they are not concerned that I'm growing too slow. The docs just want me to be as big and as strong as possible. The goal is to get me breathing on my own and gaining a little weight and strength will greatly assist in making this happen. I've been changed from a three to six hour rotation on the nose prong deal. This is really great news. I was tolerating the three hour "shifts" just fine so they bumped me up. The next step is no CPAP, but I think we are a few days away from that happening. So, everything is continuing on course, PRAISE!! Mommy came for her usual visit yesterday and of course we got to cuddle for a while. I love being held by my Mommy. I always go right to sleep and take a big fat nap. Dad had to work late so he didn't get to come by. I miss him when he can't come by, but he calls throughout the day just to check on me. Meme and Pop were also here for a while, which was cool. They come up once a week to get fresh pictures, help out, and visit. My Pop always has a camera attached to his hand whenever I see him, LOL. Today will be more of the same as far as my treatment goes. Keep praying for effective breathing, stamina, strength, and weight gain. Well, they're here for my morning physical so I've gotta go. I promise I'll do a better job of giving you guys an evening update, but the days have been really long lately. I hope each of you has a great day and that the presence of Christ will be especially real and sweet to you. Blessings, JSR.

Thirty-Eighth Day...

2008-03-27T04:48:00.005-05:00

Good morning guys and gals. Yesterday and last night both went well. I maintained having good feeds and digestion, my breathing is showing steady improvement, and my stamina is improving bit by bit. All good news! Sometimes preemies have trouble staying on the straight and narrow path of positive steps for several days in a row, but God has been gracious and yesterday we took another step forward. If you notice, in the picture the CPAP mask has been replaced by nose prongs. The prongs are the next step to getting off the CPAP and breathing without training wheels. The staff has begun a process of each day having me rotate from the mask to the prongs every three hours. If I can manage this comfortably then the time will increase to a six hour rotation. If I can handle six hours without issue then the CPAP will be gone and my breathing will be 100% me. So, it's possible that within a week or two I could be breathing without any assistance! Wow, it's hard to believe we have progressed to this point. If you've followed my journey then you know that breathing efficiently has been a major issue for me. So, to even be to the point where we can speak of that day being on the horizon is HUGE. Please pray for continued progress as we all know that this has all been the Lord's doing. He's sustained me, given me great people to care for me, and lead many to pray for me. It's such a comfort knowing that the Sovereign God of the universe loves you and is intimately involved with your whole life. I hope you guys have a great day. I'm about to start the morning routine so I've gotta run. Praise God from whom all blessings flow! Later, JSR.

A PSALM OF PRAISE
Make a joyful noise unto the LORD, all ye lands.
Serve the LORD with gladness: come before his presence with singing.
Know ye that the LORD he is God: it is he that hath made us, and not we ourselves; we are his people, and the sheep of his pasture.
Enter into his gates with thanksgiving, and into his courts with praise: be thankful unto him, and bless his name.
For the LORD is good; his mercy is everlasting; and his truth endureth to all generations.
Psalm 100 (ESV)

Thirty-Seventh Day...

2008-03-26T04:53:00.006-05:00

Greetings, I hope everyone had a good night. I'm sorry I didn't give you an evening update last night, but the day was long (it was late) and I was tired when it ended. I did well yesterday and last night. My feeds have gone up to 21 ml per serving, woo-hoo! I am still digesting my food without issue and all the parts that take out the trash are doing great. My O2 saturation rate is getting better. I'm breathing easier with fewer stat drops and when they do drop the range is much smaller than before. Also, I haven't had any episodes with my heart rate in the last two days, Yeah! I got a blood boost yesterday and it really picked me up. I wasn't showing signs of major fatigue, but I did need a little boost, which is expected. They do labs every 12 hours and they have been looking good. I think I forgot to mention that on Monday (35th Day) I had a head ultrasound. They do this periodically to check brain and skull development. It came back negative, which is good, PRAISE! So, I'm still progressing nicely and things are moving forward. That's all I have to update health wise, but there are a couple of other cool things I'd like to tell you about.

A voice says, “Cry!” And I said, “What shall I cry?” All flesh is
grass, and all its beauty is like the flower of the field. The grass
withers, the flower fades when the breath of the Lord blows on
it; surely the people are grass. The grass withers, the flower
fades, but the word of our God will stand forever.
Isa. 40:6-8 (ESV)

Yesterday Mommy and I got a HUGE surprise. A friend of my parents from their days at Beeson Divinity School dropped by for a visit. The thing is he lives in California! Yep, jumped on a plane and flew all the way to Alabama to see me. WOW!! His name is Darren and he's one of my Dad's best friends. God is using him to plant a church in Vacaville, a small town in the Bay area. He visited with us for a couple of hours til 6PM when they kick everyone out of the NICU. Afterwards he and my folks went to dinner. It's cool that God gives us things like that to encourage us. Another cool thing was my Pastor, Burt, and his wife, Anita, came by for a visit later in the evening. My Daddy and I were hanging out and I look up and there's my pastor. We hung out and chatted and then had prayer for me and my parents. They prayed for God's hand on my life and my relationship with Jesus. I'm sure I will begin to get a better understanding of what all this means when I get a little older. Well, that about covers it. I don't think I've forgotten anything, which is suprising, LOL. Today pray for continued lung development, good feedings, strength, and stamina. Thanks so much for all your prayers! I still remember my promise to give each of you a hug when I get outta here. God is so good; He's so good to me. Later, JSR.

Thirty-Sixth Day...

2008-03-25T05:08:00.007-05:00

“Ask, and it will be given to you; seek, and you will find; knock, and it will be opened to you. For everyone who asks receives, and the one who seeks finds, and to the one who knocks it will be opened. Or which one of you, if his son asks him for bread, will give him a stone? Or if he asks for a fish, will give him a serpent? If you then, who are evil, know how to give good gifts to your children, how much more will your Father who is in heaven give good things to those who ask him!"
Matt. 7:7-11 (ESV)

Hello and Good Morning, I had a good night last night. Heather was my nurse and I behaved well for her. When I first got here, which seems like a long time ago, Heather was one of the first people to care for me. However, scheduling and stuff have kept her from having me for a while so it was good to get reacquainted. Dad called this morning and she told him I was doing good and that my night went well. I have gained a little weight and right now I'm at 2 lb. 5 oz. They weigh me every night, but I only post it once a week (see the "My Weekly Progress" section) because it fluctuates a lot. I can gain 30 grams in a day then have two good BM's and lose almost all of it. So, rather than tell you about every little change I post once a week to give you a big picture view of my weight. That's also why the staff concentrates on slow steady growth because it's a sign of actual mass and not retained fluid or something like that. I know I have been doing really well lately and there's the temptation to get a false sense of security because it's been a while since I've had a set back. It's important to remember that I'm by no means out of the woods yet. The docs remind us that my condition is still termed as "critical." Tomorrow I could be back on the ventilator or having other issues that seemingly come out of nowhere. Remember the preemie principle; two steps forward and one step back. I'm really thankful to God and happy about where I'm at in my development, but "It ain't over til it's over." So, please keep praying for breathing efficiency, stamina, growth, good feedings, and BM's. I will be in the NICU for many more days and will need your support and love. We're still taking things one day at a time, begging God for a good day today and we'll worry about tomorrow, tomorrow. I'm still amazed at how God cares for us. I'm surrounded by really great and capable people all placed here by God to take care of me. I have all of you praying for me and taking such good care of my folks. Thinking about it and everything that's involved is more than I can fathom, but I suspect that's something you don't out-grow. Blessings, JSR.

Thirty-Fifth Day (evening update)...

2008-03-24T20:21:00.003-05:00

I hope everyone has had a great day. Life in the NICU was just more of what we've had lately. There are about 30 babies in here, for various reasons, and it can get loud and wild at the drop of a stat. It can get on your nerves, but you get used to it. My day went well. Dr. Mena upped my feeds to 20 ml per serving, YEAH! If you remember, the staff thought it best to suspend the amount increase until I got used to the CPAP. I've been doing pretty well and the reward is more milk. My nurse today was Emily. We basically hung out all day; I ate, slept, and pooped while she made sure I did it all correctly, LOL. Seriously, they do a really good job of monitoring me in the mundane tasks of life. It's all part of being in a intensive care unit. The best part of the day was this afternoon when Mommy got to hold me for a while. I don't think that will ever get old. Well, I'm off to get fed and some shut eye. I'll update again in the AM. JSR, out.

Thirty-Fifth Day...

2008-03-24T05:06:00.003-05:00

Trust in the Lord with all your heart, and do not lean on
your own understanding. In all your ways acknowledge him, and he will make straight your paths.
Prov. 3:5-6 (ESV)

Greetings from Birmingham, I hope Easter was a blessed day for everyone. We had a great day! My folks came by for the usual after church visit. Meme and Pop were also here all afternoon. It was good to be with them and just hang out. Mommy got to hold me for a long time. I slept like a rock while she was holding me kangaroo style. My stats were really good so nurse Dee gave us a little extra time together, cool. Dr. DiCarlo told my Daddy that my Xrays were looking better and that I am making good progress. I hope I can maintain my current pace, but as you know preemies are always susceptible to set backs. Pray that my O2 saturation rate, heart rate, and stamina remain stable. My feedings are still going well and I'm growing little by little. It's better to have a steady gain than an all of the sudden growth spurt. So, thank the Lord for my steady growth! Last night was great as Kim and I just hung out and did the usual diagnostic tasks. I "behaved" much better as she only had to bathe me once and I kept my diaper on, LOL. I'll check back in later if time allows. Y'all keep praying and I'll keep growing. God bless you all! Later, JSR.

Thirty-Fourth Day...

2008-03-23T07:48:00.006-05:00

"In the end of the sabbath, as it began to dawn toward the first day of the week, came Mary Magdalene and the other Mary to see the sepulchre. And, behold, there was a great earthquake: for the angel of the Lord descended from heaven, and came and rolled back the stone from the door, and sat upon it. His countenance was like lightning, and his raiment white as snow: And for fear of him the keepers did shake, and became as dead men. And the angel answered and said unto the women, Fear not ye: for I know that ye seek Jesus, which was crucified. He is not here: for he is risen, as he said. Come, see the place where the Lord lay. And go quickly, and tell his disciples that he is risen from the dead; and, behold, he goeth before you into Galilee; there shall ye see him: lo, I have told you. And they departed quickly from the sepulchre with fear and great joy; and did run to bring his disciples word."
Matt. 28:1-8 (ESV)

Happy Resurrection Sunday from the NICU! I hope everyone has a blessed day and a good time at worship. I know today is set aside as a special day, but my folks say every Sunday should be considered a celebration of Christ's resurrection. Anyway, I hope y'all have a great day with your church, family, and friends. My Pop & Meme will be up this afternoon after church, it'll be good to see them. I wish Papa Hal could make the trip, but he works with the Red Cross and is very busy right now. Well, on to the update.

I had another good night in relation to my breathing and feeding. However, my behavior seemed to be lacking a bit, LOL. Let me see, how can I best explain this? At some point last night I made a poopy diaper, which I proceeded to wiggle out of. It doesn't take much imagination to guess what happened next. Yep, got the stuff everywhere in my preemie condo. My nurse, Kim, was like "What have you done!" She wasn't mad, but she did have to bathe me again, LOL. Boys will be boys, I guess. Anyway, she got me all cleaned up and strapped down and the rest of the night went well. Today will consists of the staff really checking my O2 stats. I'm to the point to where my breathing is the main concern. I'm tolerating my feedings, digestion is fine, labs and Xrays are looking better, PRAISE!! The main thing lacking is consistency in breathing. So, remember that when you pray.

Thanks to everyone for lifting me up! I know God has heard each prayer on my behalf. He's been so faithful and gracious to me. Even on the bad days God has never left me as an orphan, He's always here with me. I heard a quote somewhere that said, "God doesn't move without first moving his people to pray." I think there's some truth to that. I'm gonna run for now, Dee and Kelly need to put me through the morning routine. Maybe next year we can celebrate the Resurrection together. Love, JSR.

Thirty-Third Day (evening update)...

2008-03-22T18:45:00.005-05:00

I thought I'd give you one last update for today. My day has gone pretty good although I had one period where my heart rate dipped. However, late this afternoon nurse Kelly went to Dr. DiCarlo and asked if my Daddy could hold me. Since I have been doing really well he said it would be ok. So for about an hour I took a nap while my Daddy held me. It was different than when Mommy has held me, but still cool. Now I have taken a nap in both my parent's arms. The neat thing is that my stats have remained stable whenever they have held me. Mommy says it's a sign that they should be allowed to hold me more, LOL. I don't think Dr. DiCarlo is buying her argument. Another first for the day was having Dad change a dirty diaper, which he didn't mind doing. It's been a big day and my belly is full from my most recent feeding. I'm gonna hit the rack early. I'll check back in tomorrow morning to wish y'all a blessed Resurrection Sunday. Rest well, JSR.

Thirty-Third Day (afternoon update)...

2008-03-22T13:09:00.003-05:00

Hello, I hope everyone is enjoying the beautiful day. Well, I hear it's really nice outside, but I wouldn't know since I'm cooped up in the NICU. That's ok though, there will be a day for me to play outside. The day is progressing nicely. Dee & Kelly are my nurses and they say I am doing really well. Feeds are going well, O2 stats are looking good, already had a good BM, and I'm lying on my tummy, YEAH! Lately I've been spending a lot of time on my back, which gets old quick. Some of you might be wondering why I make such a big deal about my bodily functions. BM's are real important for several reasons. They let everyone know all the plumbing is working, but they also show that my body is "processing" the nutrients out of my food. It's important that I get the most out of what I eat. Preemies often have trouble learning how to regulate themselves, which can potentially cause major health concerns. Pooping is one of the ways my body says, "Hey, I'm doing my job!" Also, if I poop on my own then I don't get the dreaded suppository. Anyone whose familiar with them will tell you they're no fun. Well, I've rambled on long enough. Later, JSR.

Thirty-Third Day...

2008-03-22T07:55:00.008-05:00

Hey guys & gals, I hope everyone is enjoying this beautiful morning. I had a "wonderful" night. I ate, slept, and filled diapers all night. I guess there are two ways to look at my filling diapers; I'm either full of it or it keeps me from being full of it, LOL. Seriously, my digestive system seems to be fully operational and in mid-season form. I am still tolerating my feeds without any major issues. However, there was one point yesterday when they drew off a large amount of residual, it was more than at any point in the past. My nurse, Emily, said it was due to my being upset. It seems that when preemies get upset or throw a fit it disrupts the digestive process. Why was I having a hissy? Well, they had just finished handling me and, as you know, I don't like that very much. I'm doing fine on the CPAP. My O2 saturation rate is fine and I seem to be holding my own stamina wise. Keep praying for strength and stamina! FYI, there are two devices used to connect the patient to the CPAP, nose prongs and a mask. The nose prongs do just what the name says, they are stuck up your nose. I am not a fan of the prong deal! The mask covers a portion of the patient's face forming a passage allowing the air to travel, my preferred method. So, it's been a good night and morning so far. The nurses just finished running me through the paces this AM and I'm gonna take a nap. Mommy and Daddy will be up later. I want to be rested up when they get here so we can do the holding thing again. Yesterday Mommy got to hold me kangaroo style (pictured). I really LOVE the kangaroo style hold. I slept for over an hour yesterday while Mommy held me. Today is Daddy's turn and I know he's looking forward to it. So, as you can see we have a big day ahead us and little dudes need their rest. Oh yeah, one last thing, tomorrow is Resurrection Sunday!! I hope everyone remembers the significance of the day and truly celebrates the beauty of Jesus Christ!! Later, JSR.

"For while we were still weak, at the right time Christ died for the ungodly. For one will scarcely die for a righteous person—though perhaps for a good person one would dare even to die—but God shows his love for us in that while we were still sinners, Christ died for us. Since, therefore, we have now been justified by his blood, much more shall we be saved by him from the wrath of God. For if while we were enemies we were reconciled to God by the death of his Son, much more, now that we are reconciled, shall we be saved by his life. More than that, we also rejoice in God through our Lord Jesus Christ, through whom we have now received reconciliation."
Rom. 5:6-11 (ESV)

Thirty-Second Day...

2008-03-21T05:36:00.004-05:00

Come now, you who say, “Today or tomorrow we will go into such and such a town and spend a year there and trade and make a profit” yet you do not know what tomorrow will bring. What is your life? For you are a mist that appears for a little time and then vanishes. Instead you ought to say, “If the Lord wills, we will live and do this or that.”
James 4:13-15 (ESV)

Good morning, I hope everyone had a good night. My night was uneventful, but the NICU was buzzing with activity. We have a bunch of babies in here and it can get pretty crazy at times. I basically slept and ate all night. My stats look good and everything is moving in a positive direction. The staff will watch me like a hawk today to observe how I'm adjusting to breathing with the CPAP. Pray that everything keeps progressing with my breathing issues. This is gonna be a short update this AM, not much to update on, which is a good thing. I'm off for my morning physical, Xrays, labs, and miscellaneous tasks. Later, JSR.

Thirty-First Day (update)...

2008-03-20T21:42:00.005-05:00

Hey guys, I'm sorry I'm so late updating everyone. We had a great day today! I went off the vent this afternoon around 1 o'clock. Dr. Strange was "really pleased" with how I responded to breathing with a CPAP. There's still a chance I might have to go back on the vent in the future. It all depends upon my ability to handle everything strength and stamina wise. Another important factor is my diet; I'm on a diet with actual food rather than IV fluids. The IV provides necessary nutrients, but it's the real stuff that helps you build muscle and mass. So, pray for strength, stamina, efficient breathing, and continued success in feedings. Dr. Strange suspended the gradual increase in the amount of milk at my feedings. This will give me a chance to adjust to this big change without the added stress of digesting a larger amount of food. Once I am breathing a little easier in a day or two then feeding increases will resume. Everyone here is doing all they can to help me so we don't have to go back to the ventilator. This is an answer to prayer so let's be sure to thank God for it. Night, JSR.

Thirty-First Day...

2008-03-20T05:20:00.007-05:00

Good morning, now that our Internet access has been restored the updates will be more frequent. Hopefully, I'll be able to give everyone both a morning and an evening update with the latest news. Technology is great, but when it "glitches" it's a real headache. I want to thank each of you for your concern over these past few days. Mommy & Daddy told me they got calls from people worried that something was wrong since I hadn't updated as often. It really encourages me (us) to know that so many are keeping up with my journey and praying for me (us) each step along the way.

"Blessed be the LORD, because he hath heard the voice of my supplications. The LORD is my strength and my shield; my heart trusted in him, and I am helped: therefore my heart greatly rejoiceth; and with my song will I praise him. The LORD is their strength, and he is the saving strength of his anointed. Save thy people, and bless thine inheritance: feed them also, and lift them up for ever."
Psalm 28:6-9 (ESV)

I had a good night with lots of sleep and minimal issues. Elizabeth was my nurse and things went really well. At some point she started me on the medicine I mentioned in my last post. It seems to be helping because I haven't had any episodes since it kicked in. We'll see how the day goes and if this does the trick or if it only corrects part of the problem. My Dad called this morning and I heard her tell him I was doing "great!" I like those kind of reports. Today's focus will be on trying to get enough improvement in my overall breathing so I can kick this vent. The quicker I can get off the vent the better I'll be. Hopefully, that will happen at some point in the near future. Also, pray for continued strength and stamina. I'm about to enter the point in my treatment where they start working on making sure my bones are strong and that my whole body develops correctly. Up to this point my docs have been primarily concerned with my heart and lungs, but now the focus broadens, that means a whole bunch of new issues. We'll take 'em one at a time and pray our way through each one as it comes.

I'll update later today. Right now, it's time to start the morning routine. I hope everyone experiences Christ's presence today. Love, JSR.

Thirtieth Day...

2008-03-19T21:34:00.004-05:00

Hello, I hope y'all had a good day. Today was a positive day in many areas. I haven't had an "episode" with my stats all day, great news. I've put on a little more weight and now weigh in at 980 grams. My feedings and digestion are going well. There has been very little residual, unprocessed food, from my feedings, which is great! My digestive system is performing well, I had 3 BM's today. So, I seem to be progressing at a nice pace. Breathing efficiency continues to be an issue. Tonight they are going to start me on some meds that will help my lungs and decrease any internal swelling that might be part of the problem. Please remember all of these things in prayer as we still have many days ahead of us in the NICU. All the things I mentioned are good and signs of my body maturing, but they weren't the best part of the day. Today's highlight was when I got to be held by my Mommy (see pic). Yep, they rearranged all my hook ups and put me right in her arms. It was cool!! We sat for about 30 minutes until I got tired. I pretty much slept the whole time, but the environmental change kinda tuckered me out. It must have been a thrill for her to actually hold me instead of just reaching inside my crib to touch me. Dr. Strange says that Mommy holding me is a bonding exercise. That's really important since I'm supposed to still be in the womb. Tomorrow should be another good day if progress continues. So, everyone keep praying and I'll keep growing. Later, JSR.

Twenty-Ninth Day...

2008-03-18T21:07:00.014-05:00

"He only is my rock and my salvation, my fortress; I shall not be shaken. On God rests my salvation and my glory; my mighty rock, my refuge is God."
Psalm 62:6-7 (ESV)

Good evening from the NICU. I hope everyone had a great day. My day...let's just say I've been busy. Today was a good day for the ol' plumbing as evidenced by the two LARGE BM's I had earlier. A little while ago Kim, my nurse for the night, gave me a much needed blood boost. (I might have forgotten to mention that my labs have been moved to once every twelve hours, which is good.) Every few days I get some blood to help me replenish what is drawn for labs and such. Also, Dr. Strange increased my feedings to 18 cc (ml) and has taken me off the IV supplements. My diet is now 100% all natural milk, WOO-HOO!! I have had a few episodes where my stats dropped today, but the drops might be related to mucus build up. Because I am so drooly I produce more wet stuff than I can cough out. Over time a build up of retained mucus begins to hinder my breathing and heart rate. However, once they suction me out my stats improve to the acceptable range and I'm good to go for a while. It's normal for we little ones to produce more saliva than we can eject. So, the need for the occasional suctioning isn't alarming. Well, that pretty much catches you guys up with the latest news. Keep praying for my breathing issues as well as continued growth, strength, and successful feedings. I'm gonna turn in for the night, little boys need their sleep. Good night, sleep tight, and don't let the bed bugs bite.

Twenty-Eighth Day...

2008-03-17T21:39:00.005-05:00

Hey guys, can you believe I've been here a month!! Yep, today makes me one month old. So much has happened the last four weeks. In some ways it feels like it's been longer, but in other ways it seems like I was born just yesterday. Daddy says many things in life are that way. Today was a day like every other day this past week. I'm continuing to do well with my feedings and am still struggling to get my breathing stabilized. I'm not complaining, things could be a lot worse, just stating the facts. As I've said many times before, preemies often have difficulties in this area. So, we'll just keep praying that I would get stronger and that my lungs would mature.

My nurse today was Alice and I'll be hangin' with Elizabeth tonight. I've known these two ladies my whole life, LOL. Today was great day on my social calendar. One of Mommy's good friends, Shari, came to visit us. It was my first time to meet her, although I've already met her hubby, Brian. Shari is a nurse and has always been a good source for medical info for my folks. Meme and Pop also came by for a visit, which is always good. Another cool thing that happened today was my Mom surprised the NICU staff with two Honey Bun cakes; one for day shift and the other for the night shift. However, there is some doubt as to whether or not the second cake survived til the evening, LOL. My Dad says my Mommy can really cook! So, I guess I have some good meals ahead of me when I go home. As you can see it's been a busy day. I'm gonna go for now, but I want to, once again, thank everyone for their prayers on my behalf. I don't know how people, big or little, get through life without prayer. Sleep well and don't forget to thank the Lord for all the "little things," like breathing. JSR, out.

"Since then we have a great high priest who has passed through the heavens, Jesus, the Son of God, let us hold fast our confession. For we do not have a high priest who is unable to sympathize with our weaknesses, but one who in every respect has been tempted as we are, yet without sin. Let us then with confidence draw near to the throne of grace, that we may receive mercy and find grace to help in time of need."
Hebrews 4:14-16 (ESV)

Twenty-Seventh Day (evening update)...

2008-03-16T21:50:00.002-05:00

Good evening from the NICU. My day remained pretty much the same as I reported earlier, ok but not great. One bit of good news that came from today was the positive results of my feedings. Right now I am doing really well digesting my food. If I continue to process my feedings they will keep increasing the serving size. Late this afternoon Dr. Mena upped my feeding size from 13 to 14 cc's every three hours. He also said that if I digest most of each feeding for three feedings in a row then the serving will increase by 1 cc. So, three consecutive successful feedings at 14 cc's means the next (fourth) feeding will go up to 15 cc's and so on. Pray that my digestion continues to progress. This is important to my overall growth and strength. Also, pray for my breathing issues as they continue to be a concern. I hope everyone has a good night of rest. I'll update at some point tomorrow. Thanks for your prayers!!

Twenty-Seventh Day...

2008-03-16T13:45:00.007-05:00

“Behold, God is my salvation;
I will trust, and will not be afraid;
for the Lord God is my strength and my song,
and he has become my salvation.”
Isaiah 12:2 (ESV)

Good afternoon everybody, I hope y'all have had a great morning. Myself, I've been enjoying a good Sunday. Today is the first day of my new diet, all natural milk without the IV. This new diet is good for two reason BIG reasons. First, it will be better for my liver long term. Extended use of IV protein supplements increases the risk of liver problems in preemies. Second, the all natural stuff tastes way better than the IV medicine. If I continue to tolerate my feedings then I'll be off the IV stuff permanently. My breathing has been inconsistent today, as usual. The staff is keeping a really close check on my blood work, O2 rate, & heart rate. Hopefully I can reach some level of consistency before the day is over. Please continue to pray specifically for efficiency in breathing & stamina. I'll update again later in the evening. Later, JSR.

Twenty-Sixth Day...

2008-03-15T21:25:00.006-05:00

I'm back!! I've got Internet access again, so hopefully you guys will get an update every day. The updates might not be as early as they once were, but I'll try my best to keep you in the know. There have been a lot of changes since Wednesday's post. I'm still on the vent, but it seems that nothing else is the same. I now weigh 30 grams over 2 lbs, Yeah!! I now have regular BM's!! As of tonight I will be getting 12 cc (ml) of milk every three hours. My lungs are still maturing, but they aren't ready to handle the responsibility of breathing full-time. Dr. Mena stresses the fact that I'm not sick, just growing. So, keep praying for breathing issues, good feedings, BM's, and overall strength. I really missed you guys! I hope Internet issues are behind us. Everyone have a great day at church tomorrow. JSR out.

Twenty-Third Day...

2008-03-12T11:34:00.008-05:00

Hello from the NICU! I know that some of you have been worried, since I didn't post an update last night or this morning. Everything is fine... but my Internet has been down. Sorry-didn't mean to worry you!

Things are going well. Yesterday, they upped my feeds again so that now I'm up to 5mls every 3 hours. That's a whole teaspoon! It may not sound like much, but it is for this little tummy! Thankfully, I'm still processing my food well. I also gained a little more weight and am now up to 2 lbs! I'm still having some trouble keeping my O2 levels consistent, and am still having some "episodes" where my heart rate drops and my nurse has to run over and stimulate me to breathe and recover. Dion, one of my respiratory techs, told Mommy yesterday that they had started giving me some breathing treatments several times a day to help with this. I've responded well so far, and am hoping that I will continue to improve so I can come off the ventilator soon.

Today, I have several specific prayer requests. Please continue to pray that I tolerate my feedings well and continue to gain weight and grow strong. Also, please pray that God will help my lungs to work they way they need to and my body to process air like it should. Pray that the new medicine they're giving me will help with this and that I can maintain steady O2 and CO2 levels. Pray that I can improve in these areas and come off the ventilator soon. I know that God is a big God and He can handle all this stuff. After all, He made me!

Well, I guess that's all for now. Don't be alarmed if I don't get to post regularly for a few days... they're still working on my Internet situation. Just keep checking in with me! Thanks for all your prayers for me and Mommy and Daddy. Keep praying and I'll keep growing! JSR out.

Twenty-Second Day...

2008-03-11T04:54:00.006-05:00

Good morning from the NICU. I trust everyone has had a restful night's sleep. Personally, I had another good night of slumber. Things went about the same as the rest of the day, really smooth. My feedings went well, although I did have some residual (incomplete digestion of all my food) one time, but no one seems overly concerned since it was just once. I seem to be more stable in my breathing efficiency, which is reflected in the decreased help I am getting from the ventilator. I wish I had the knowledge to give you a more thorough explanation of the whole process, but here are the basics. The vent gauges how much it is helping me and I am down to only needing 5% of help on a consistent basis. So, my body is doing more of the actual work of absorbing the O2 out the air I take in. This also means that my body is doing a better job of pushing the CO2 out of my system. All really good news!

"I have put my trust in the Lord GOD,
that I may declare all thy works."
Psalm 73:28b (ESV)

Today I hope to take one more step toward getting off the vent. We'll just trust the Lord, do what we can, and let my doc make the call. Today we're praying for continued improvements in breathing and feeding, more rest and "actual" weight gain, as well as increased strength. I say this all the time and it never gets old; PRAISE the Lord and THANK YOU so much for all your prayers!! I don't have the words to express how much they mean to me and my family. Oh yeah, one final thought. The circumference of my head has increased, but I'm not gonna tell you by how much. I might get accused of having "the big head," LOL. I'm off to my morning routine. I hope everyone has a blessed day. Later, JSR.

Twenty-First Day (update)...

2008-03-10T22:04:00.002-05:00

I know it's late and many won't read this until morning, but I thought I'd give you a quick word on my day. Everything went pretty much the same as yesterday with the exception of my feeding portion being increased from 3 cc to 4 cc. More milk!! Mommy says I'm beginning to look a little more filled out and no so boney. Dr. DiCarlo said that my labs look good and I'm doing fine. He wants to keep me on the vent a little while longer. The daily X-rays don't show any damage to my lungs. The vent can cause some lung damage if you have to stay on it for a long time. But I'm not having any of those issues, PRAISE!! Dee & Kelly were my nurses today, they're cool. I hung out with them and Mommy most of the afternoon. Well, that about covers it. I hope everyone sleeps well. JSR, out.

Twenty-First Day...

2008-03-10T04:58:00.008-05:00

Last night was a really good night. My nurse, Kim, and I hung out all night, but it got busy late yesterday and I didn't have a chance to update you. Sorry. This is a big update so here it goes.

Dr. Strange upped my feedings from 2 cc to 3 cc every three hours, which I am handling just fine. PRAISE! I have gained some actual weight, not just retained fluid, and am up to a whopping 1 lb. 15 oz., PRAISE! Cherie, one of my RT's, hooked me up to this thing that provides better suction. She figured out that one reason my labs weren't consistent was my high level of mucus/saliva production. (Remember, I am a very drooly baby, which is a good thing.) My stats would begin to waver on the monitors and someone would suction me and my stats would improve, go figure? Anyway, this little device enables the nurses & RT's to suction me more often with minimal discomfort, a fact I really like! So, my labs have begun to gain some consistency. This is not a fix all but it does help, PRAISE! Also, if I keep things up throughout the AM they might try to extubate (take me off the ventilator) later today. That would be HUGE! So, I'll bet you can guess what we're praying for today. Yep...steady breathing efficiency, stamina in the art/act of breathing, continued success in feedings, lots of sleep, and a good BM. I know that's a lot, but like I said things got busy late yesterday.

All the praise for this good report belongs to God and the NICU staff. The Lord continues to be faithful and the people here continue to be just awesome in their gentle and thorough care for me. However, there is something very important I want/need everyone to remember. Preemies grow by the two steps forward one step back principle. So, don't be shocked if I regress some in one of these areas. It won't mean all has been for nothing, somebody did something wrong, or God has forgotten me. No, it's just the way the world works in the NICU. So, keep the faith that God knows what he's doing and whatever happens is what he wants. Y'all keep praying and I'll keep growing. Later, JSR.

Psalm 150
Praise ye the LORD. Praise God in his sanctuary:
praise him in the firmament of his power.
Praise him for his mighty acts:
praise him according to his excellent greatness.
Praise him with the sound of the trumpet:
praise him with the psaltery and harp.
Praise him with the timbrel and dance:
praise him with stringed instruments and organs.
Praise him upon the loud cymbals:
praise him upon the high sounding cymbals.
Let every thing that hath breath praise the LORD.
Praise ye the LORD.

Twentieth Day...

2008-03-09T11:49:00.007-05:00

Praise ye the LORD. Praise the LORD, O my soul.
While I live will I praise the LORD:
I will sing praises unto my God while I have any being.
Psalm 146:1-2 (ESV)

Last night wasn't as good as yesterday. My labs weren't as consistent and my O2 & CO2 levels lacked the consistency we're looking for. I rested well and tolerated my feeding just fine, but my breathing efficiency continues to be a problem. This has been an ongoing issue since I first arrived at the NICU, but that's "normal" for some preemies. I'm learning that the word "normal" is a very subjective term. Today's focus will be on increased efficiency in breathing and better O2 saturation rates. That's what we're praying for today along with the usual requests for strength, stamina, good feedings, and rest.

My parents missed church this morning. I'm glad, they needed a break! They haven't been sleeping much over the last three weeks. Just yesterday my Daddy kept falling asleep. I wanted to tell him to go home and take a nap, but work had caused him to miss two visitations this week. I knew he wasn't leaving until he was good and ready. I think the Lord knows we get tired and just need some down time. The same thing happened to me this week. I was really tired and needed a break so the Lord provided the ventilator to give me some rest. They're coming up with the Phillips, some really good friends of my folks, after lunch. Meme & Pop are coming for a visit at 3, it'll be good to see them. I like the way they make a big deal over me ;-). Pop always has his camera ready for a picture, LOL. Well, that's about it for this morning, I'll chat back at you this afternoon. I hope everyone has a great Lord's Day! Blessings, JSR.

Mommy's Moment 03/8/2008

2008-03-08T20:31:00.006-06:00

I think one of the hardest lessons to learn is that God is sufficient. We say it in church all the time. We say we believe it... but when it comes down to it, we-or I guess I should say "I"-don't really evidence that in my life. It's easy to think He's enough when things are easy in life... but when they get tough, I tend to rely on other things or other people to sustain me. This week, God has been teaching me that HE is ENOUGH. HE is what I need. HE is Who I need to rely on, not Keith or great reports from the doctor. It's not been an easy lesson, and I have a feeling that I haven't completely learned it yet and will have to have more lessons in the future.

It's been a very difficult week for me. Physically, I'm completely exhausted. I'm normally an 8-hour a night sleeper but now I get about 3 hours at a time. I started back to work and am trying to do 8 hours worth of work in about 5 each day so I can spend the majority of my afternoons with Jonathan. My hormones are still out of whack, so I get very emotional very easily. -And the toughest thing has been that this has been a tough week for Jonathan. While I know that going back on the ventilator has been the best thing for him and I totally trust his doctors, respiratory techs, and nurses, it has still felt like a huge step backwards and I only want to move forward. One afternoon, all of Jonathan's monitors started screaming at once and his respiratory tech came running over with a very serious look on her face. I was asked to wait in the waiting room so they could do what they needed to help my son. Those were an agonizing 10 minutes filled with fear at what was happening. As it turns out, his ventilator tube had come out of place and he had to be reintubated. It's not an uncommon occurrence, and he was fine. I, on the other hand, was a wreck!

During some of the hardest moments this week, I've asked God why He would cause or allow these tough things to happen in my life-especially when I didn't have Keith at my side to lean on and to strengthen me. The resounding answer in my heart has been, "Because, My child, I am all you need. I am enough." The truth is that I need Him more than I need Keith's shoulder to lean on, more than I need sleep, more than I need less stress in my life, even more than I need Jonathan to be ok 100% of the time. Christ has been sufficient for me this week even though it has been hard and exhausting physically and emotionally. He has sustained me when I thought I would just melt into a puddle of tears, when I was afraid, when I received disappointing news... He has been the one in control of everything. Nothing is a surprise to Him and nothing happens without His causing or allowing it to happen.

I've learned a lot these last three weeks. I've learned about things like Tidal Volume on a ventilator , O2 saturation levels, CO2 levels. I've learned even more what an amazing blessing it is to have such supportive, loving friends and family. I've learned that it is possible to function on way too little sleep. But, the most important thing I've been learning this week is that Christ is sufficient, no matter what is happening in my life. I wish I could say that I've already learned the lesson... but I'm not always a very good student. Thankfully, my Teacher is patient and loving even when He's teaching me a hard lesson.

Daddy's Diary 3/8/2008

2008-03-08T19:19:00.006-06:00

One of the first things they tell you when your child enters the NICU is, "Don't be discouraged by setbacks, they are inevitable!" The next thing they tell you is, "Don't be discouraged by setbacks, they are inevitable!" It doesn't take one long to figure out that your life is going to be radically different. There will be days of great joy over a poopy diaper and there will be days of concern because of no poopy diapers. Yes, a day can revolve around whether or not your preemie's body took out the trash.

Jonathan has done well, even with his setbacks. The setbacks he has experienced have not been as serious as those experienced by others. God has been very gracious and merciful in the midst of his allowing pain. It's hard watching your child undergo painful procedures and tests with potentially harmful consequences that are designed for his good. The pain is necessary if you want your child to have a chance at a full life. You can't do it for him, but you have to watch them struggle through it. It's hard not to be discouraged and many times I have been just that, discouraged.

On those days I'm at a loss someone will call, email, write a blog comment, or we'll get a note/card of encouragement. Just when I need it most, God provides a gentle reminder of his love and comfort. I am watching my son struggle with challenges that he cannot face alone and require help. God is watching his child face challenges that he cannot face alone and require help. In both cases, Jonathan's and mine, God is allowing pain designed for our good and at the same time he's providing all we both need to have an abundant life.

Nineteenth Day (update)...

2008-03-08T15:10:00.002-06:00

I thought I'd give you an afternoon update; the day has gone well. The doc on duty, Dr. Strange, increased my feedings from 1 cc to 2 cc every three hours. My labs have been cut from every six hours to every twelve hours. Also, my assistance from the ventilator has decreased. So, today has been a day of progress. However, I am experiencing what is termed as riding the ventilator. This can best be explained as me subconsciously realizing that the vent will work for me, therefore I get a little lazy and decide to let the vent breath 100% for me. This is a bad move because the vent is only here to help me. Whenever this happens all the lights and buzzers on the monitors go off. It's normal for preemies on the vent to go through this false sense of security. My nurse today is Julie and she's not too concerned about it. Well, that catches everything up. Thanks for your prayers. JSR, out.

Nineteenth Day...

2008-03-08T06:36:00.005-06:00

Prayer for Spiritual Strength
"For this reason I bow my knees before the Father,
from whom every family in heaven and on earth is named, that according to the riches of his glory he may grant you to be strengthened with power through his Spirit in your inner being, so that Christ may dwell in your hearts through faith—that you, being rooted and grounded in love, may have strength to comprehend with all the saints what is the breadth and length and height and depth, and to know the love of Christ that surpasses knowledge, that you may be filled with all the fullness of God. Now to him who is able to do far more abundantly than all that we ask or think, according to the power at work within us, to him be glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen."
Eph. 3:14-21 (ESV)

I hear it's snowing outside. My first snow and I'm stuck in the preemie condo. Earlier this morning my folks called to check on me and the report was "nothing new to report." Kim, my nurse, says I had a really good night and that I'm back to being my feisty ol' self. I'll take her word for it because I slept like a rock. This AM I'll have the daily routine of labs, X-rays, and what amounts to a complete physical. You wouldn't believe how thoroughly they check me each & every morning. I get a bumper to bumper inspection even if the staff thinks I'm in good shape. I'm glad they are so thorough and don't leave a single stone unturned. Incidentally, I'm 28 weeks old today, that's another week in the books. The NICU is filling up with other babies like me. It seems there a lot of us who were early to the party, LOL. Some of these guys & gals will be short timers and they'll leave in few days. Others are like me, we'll be here for the long haul. If something changes I'll let you know, but for now keep praying for improvement in all the usual areas (O2, strength & stamina, rest, and successful feedings). I hope everyone enjoys their day! Later, JSR.

Eighteenth Day (update)...

2008-03-07T20:39:00.002-06:00

Today was one of my better days. When Mommy came to see me she didn't consult with any of the docs. That never happens, unless the docs think you are doing well and there's nothing to consult about. So, I'm doing very well and the docs are all happy with where I am. Of course, we are riding the preemie roller coaster so everything is subject to change. Dr. Strange was on duty today and she is optimistic about my progress. Thanks so much for all the prayers for me and my folks. I think God uses our prayers in a profound way beyond our mental abilities to accomplish his purpose. He's such a mystery, but yet so near. The great big God who created the universe is the same God who has time for a little dude like me. That's the definition of cool! I hope everyone has a great night. Blessings, JSR.